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@lorirenee1

Hi Laura, I just read your message several times, to try to get a clue as to what is wrong with you. I also read about CRPS. One thing that strikes me that you do not have CRPS, is that I do not have a sense that it goes away. I could be wrong. Leaving for years and coming back is unusual for CRPS? Pain spreading from an injury, to an area not injured at all, does sound like it. Pain much more severe than what has happened with the injury itself does sound like it. The change of color in your feet due to weather makes me think you should check for Raynauds Syndrome, although I do not know if there is nerve involvement with Raynauds. I know you can be in intense pain, and that is so awful that my heart goes out to you. I am so glad you are going to the neuro doc. He will run a lot of blood tests and checking auto immunity for sure. Did something happen to you that you think may have triggered the return again? So stinkin' hard. As far as me, I live around my feet. Shoes on, shoes off, licocaine patches, CBD salves and drops, gabapentin, etc. My neuro doc made a compounding cream. Three hundred bucks for an ounce. Not that impressed. It does help my toes feel like they are not being yanked out of their sockets. Always a good thing. But my twenty five dollar salve works as good for the rest of the foot. Feet are decent today. Yesterday, I could have screamed most of the day if I were a nut job. They hurt like hell. Used all ammunition I had. Nothing worked too well. What can I say? FEET RULE. I don't.

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Replies to "Hi Laura, I just read your message several times, to try to get a clue as..."

@lorirenee1, what kind of salve did the compounding pharmacy make for you? I was going to see about an Amitriptyline and Ketamine compounded cream. I spent 136.00 for the strongest cbd/thc salve. It helps maybe just a bit. My feet never really got all the way better but definitely they became very manageable and I was able to be pretty active. I always had to wear certain shoes and changing to a different one was always a pain. Who knows...I’m just hoping I can get some answers from the neuro doc. I know it just takes time and trying to be patient. Meditation helps...I’m glad you are getting a few pain free days!! -Laura