Dietician said only stay hydrated with Stage 3b CKD....no other diet

Posted by kayabbott @kayabbott, Dec 18 11:34am

Frustrating, my eGFR is 32, but the renal dietician said I only need to drink enough water, no other dietary changes (mostly pescaterian now). A year ago when my eGFR was 52 the nephrologist said just hydrate. I asked her if there are any books or charts that help with a stage 3b diet, and she dismissed that. I don't have diabetes, high BP, or heart disease and am on Jardiance because I don't tolerate meds. They tend to be reactive rather than proactive, treat it rather than slow the decline. Have your had the "don't worry about it" dismissive "advice"?

Interested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.

mah7925 | @mah7925 | 6 days ago

What is AMD?

kayabbott | @kayabbott | 6 days ago

In reply to @mah7925 "What is AMD?" + (show)

@mah7925 It stands for age-related macular degeneration. https://my.clevelandclinic.org/health/diseases/15246-macular-degeneration

lsrhode | @lsrhode | 4 days ago

My experience is the CKD dieticians in my area can advise you when you’re on dialysis but they’re not proficient in what you need for other levels, especially 3b where my husband and I both are. Also they can only advise when you’re in the hospital. We have none that are in private practice or that do telehealth consultations.

kayabbott | @kayabbott | 4 days ago

In reply to @lsrhode "My experience is the CKD dieticians in my area can advise you when you’re on dialysis..." + (show)

@lsrhode This one was certainly a dud. She also tried to give me bad advice on microscopic colitis when she obviously didn't know what it is. Thanks for the info. We definitely have to find our own answers.

dougr19 | @dougr19 | 3 days ago

There are many threads concerning diet with our various kidney problems or other. My continued research into this topic has recently led me to "American College of Lifestyle Medicine"
This organization has specialists across all fields of medicine: Board certified physicians, dietitians, nurse practitioners. All dedicated to improving your health naturally with evidenced based research. Their website to find practitioners is not very friendly, however if you Google the names listed in your area, you will get their information. In my area I have found a dietician and physician who have helped me tremendously. All our journeys continue. Blessings.