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Diagnosis seems a mess…any ideas on NSCLC %@

Posted by teedlum @teedlum, 15 hours ago

Lung right lower lobe, fine needle aspiration: adequate.
Non small cell carcinoma. Interpreted by Doctor.

Final diagnosis, right lower lobe lung find needle aspiration cytology.
Malignancy; immunohistochemical profile favors Dino carcinoma of the lung with TTF-1 andNapsin A being positive along with rare p63 positive.

Then my pulmonologist nurse practitioner finally called me back like two weeks after what was printed above from the HOSPITAL and said that they wanted me to go see an oncologist that the diagnosis was non-conclusive.

What I don’t understand is above it looks like it was conclusive by the specialist over at Baptist Integris and now this nurse practitioner tells me it’s nonconclusive and when I asked your question, she didn’t know anything. She said I’m sorry you know I’m just a nurse practitioner does anybody have any ideas about the discrepancy between nonconclusive and all the information above?

Thank you

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mamajite | @mamajite | 13 hours ago

@teedlum it's terrible that no one is following up on your biopsy with you. the ordering doctor (pulmonologist?) should have an appointment with you to review the results and help with any needed referrals for next steps. that said, it looks conclusive to me, too, for non small cell lung cancer. p63 is something they check for that helps them know which kind of NSCLC you have. a positive p63 test is more likely to be squamous cell (rather than adenocarcinoma.) if it was me, I would see an oncologist asap. sometimes health care providers are not comfortable with giving "bad" news. but in my experience, they will not refer you to an oncologist without a strong likelihood that you need one.

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teedlum | @teedlum | 12 hours ago
In reply to @mamajite "@teedlum it's terrible that no one is following up on your biopsy with you. the ordering..." + (show)
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@teedlum it's terrible that no one is following up on your biopsy with you. the ordering doctor (pulmonologist?) should have an appointment with you to review the results and help with any needed referrals for next steps. that said, it looks conclusive to me, too, for non small cell lung cancer. p63 is something they check for that helps them know which kind of NSCLC you have. a positive p63 test is more likely to be squamous cell (rather than adenocarcinoma.) if it was me, I would see an oncologist asap. sometimes health care providers are not comfortable with giving "bad" news. but in my experience, they will not refer you to an oncologist without a strong likelihood that you need one.

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@mamajite
Thank you so very much. Having mates to talk to makes us feel better.

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mamajite | @mamajite | 11 hours ago
In reply to @teedlum "@mamajite Thank you so very much. Having mates to talk to makes us feel better." + (show)
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@mamajite
Thank you so very much. Having mates to talk to makes us feel better.

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@teedlum it really does help to not feel alone. do you have an appointment scheduled with an oncologist yet? I always suggest trying to be seen at a NCI designated cancer center if there is one close to you (and it works with your insurance).
https://www.cancer.gov/research/infrastructure/cancer-centers/find

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