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Diagnosis seems a mess…any ideas on NSCLC and follow-up?
Lung right lower lobe, fine needle aspiration: adequate.
Non small cell carcinoma. Interpreted by Doctor.
Final diagnosis, right lower lobe lung find needle aspiration cytology.
Malignancy; immunohistochemical profile favors Dino carcinoma of the lung with TTF-1 andNapsin A being positive along with rare p63 positive.
Then my pulmonologist nurse practitioner finally called me back like two weeks after what was printed above from the HOSPITAL and said that they wanted me to go see an oncologist that the diagnosis was non-conclusive.
What I don’t understand is above it looks like it was conclusive by the specialist over at Baptist Integris and now this nurse practitioner tells me it’s nonconclusive and when I asked your question, she didn’t know anything. She said I’m sorry you know I’m just a nurse practitioner does anybody have any ideas about the discrepancy between nonconclusive and all the information above?
Thank you
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@teedlum it's terrible that no one is following up on your biopsy with you. the ordering doctor (pulmonologist?) should have an appointment with you to review the results and help with any needed referrals for next steps. that said, it looks conclusive to me, too, for non small cell lung cancer. p63 is something they check for that helps them know which kind of NSCLC you have. a positive p63 test is more likely to be squamous cell (rather than adenocarcinoma.) if it was me, I would see an oncologist asap. sometimes health care providers are not comfortable with giving "bad" news. but in my experience, they will not refer you to an oncologist without a strong likelihood that you need one.
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5 Reactions@mamajite
Thank you so very much. Having mates to talk to makes us feel better.
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5 Reactions@teedlum it really does help to not feel alone. do you have an appointment scheduled with an oncologist yet? I always suggest trying to be seen at a NCI designated cancer center if there is one close to you (and it works with your insurance).
https://www.cancer.gov/research/infrastructure/cancer-centers/find
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5 Reactions@mamajite
Thank you mamajite. They made me an appointment about 15 miles from me. I will definitely check the link you sent me and see what I can find.
Have a wonderful day! 💗🌷😃
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2 Reactions@teedlum close to home definitely helps for getting to appointments. if you have any concerns or just want another opinion on the best treatment plan, academic cancer centers are great for second opinions, too. let us know how your oncology appointment goes. ❤️
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1 ReactionI’ve been watching Go2 living room series and they talk about the importance of a team. And they have a 7 member team that they interview, all with different specialties.
How do any of you feel about that? And if you don’t mind sharing do you have a team?
Thank you and hugs and love to all 💞🌷💞
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1 Reaction@teedlum I like Go2 also - I find their videos/emails helpful and informative.
My team:
2 medical oncologists (1 local, 1 specialized in my cancer in another city)
1 dermatologist oncologist (helps with side effects from cancer treatment)
1 asthma/allergist (helps with managing my breathing)
1 oncology nurse practitioner (helps with managing cancer and medication side effects, nutrition, etc)
1 primary care physician (helps with everything else!)
Wow so much help! Thank you.
So as soon as i see the first radiation oncologist at Baptist and see what he has to say.
Then wait for 2nd opinion at the NCI center.
Is that when you ask for these other specialist to be in your team?
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1 Reaction@teedlum usually a medical oncologist should be the quarterback and help you loop in others as needed. but one reason I chose to receive treatment at my closest cancer center (v my regular medical group) is because of the additional supportive services that were available there.