1. < Lung Cancer

Did anyone have a missed diagnosis of NSCLC?

Posted by franciekid @franciekid, Feb 3 8:37am

Did anyone have a missed diagnosis of NSCLC? I had a routine chest Xray in the ER incidental to any lung issues. The radiologist saw a suspicious nodule and recommended a CT scan follow up. The hospital never gave me the report. 4 months later, I was diagnosed with lung cancer. The nodule had grown from 1.4 to 3 cm. Curious as to how unique this is.

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cmcguire10 | @cmcguire10 | Feb 23 3:54pm
In reply to @cmcguire10 "No, I have been lucky so far. Only had that nodule and one small 4mm one..." + (show)
@cmcguire10

No, I have been lucky so far. Only had that nodule and one small 4mm one in my right upper lung that has never changed. I have my 2nd 6 month scan on March 29th and a praying that all stays well! They took out a segment instead of an entire lobe and said “clear margins and no lymph nodes involved”. I did not have a biopsy before hand. It was confirmed after it was removed and it was tested and confirmed to be Adenocarcinoma. No chemo, radiation or immunotherapy needed. I did have a bronchoscopy and a PET scan. Nothing else “lit up”. Even the nodule itself barely lit. Again, I feel very lucky that it was caught early.

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Honestly as soon as the Pulmonologist compared the two CT scans he said he knew it was cancer and we should get it out. I agreed! Didn't want the “watching”. I didn't want it to grow or spread.

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cmcguire10 | @cmcguire10 | Feb 23 3:56pm
In reply to @cmcguire10 "Duh, nevermind the last one🤪" + (show)
@cmcguire10

Duh, nevermind the last one🤪

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I meant that for my own post not yours franciekid. 🫣

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bradandrus76 | @bradandrus76 | Feb 23 6:06pm
In reply to @cmcguire10 "No, I have been lucky so far. Only had that nodule and one small 4mm one..." + (show)
@cmcguire10

No, I have been lucky so far. Only had that nodule and one small 4mm one in my right upper lung that has never changed. I have my 2nd 6 month scan on March 29th and a praying that all stays well! They took out a segment instead of an entire lobe and said “clear margins and no lymph nodes involved”. I did not have a biopsy before hand. It was confirmed after it was removed and it was tested and confirmed to be Adenocarcinoma. No chemo, radiation or immunotherapy needed. I did have a bronchoscopy and a PET scan. Nothing else “lit up”. Even the nodule itself barely lit. Again, I feel very lucky that it was caught early.

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Mine didn't light up on pet either. I was so relieved at that point I wanted to hug the doctor but it was in the middle of covid. I'm wondering why tgey wan to do a biopsy on me. Might as well just get it out and test it then. I'm not a doctor though. Hopefully things will be clear for me as well. Nothing has been seen anywhere else in my lungs. Just the lower right lobe. I hope your future scans come back clear. Thank you for the time you've taken to respond it helps me keep calmer.

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cmcguire10 | @cmcguire10 | Feb 23 6:26pm
In reply to @bradandrus76 "Mine didn't light up on pet either. I was so relieved at that point I wanted..." + (show)
@bradandrus76

Mine didn't light up on pet either. I was so relieved at that point I wanted to hug the doctor but it was in the middle of covid. I'm wondering why tgey wan to do a biopsy on me. Might as well just get it out and test it then. I'm not a doctor though. Hopefully things will be clear for me as well. Nothing has been seen anywhere else in my lungs. Just the lower right lobe. I hope your future scans come back clear. Thank you for the time you've taken to respond it helps me keep calmer.

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I felt the same way when everyone was wonderful enough to answer all of my questions. Thats what we’re all here for, Support! There are many on here with all types of experiences and different journeys so Im sure there are more to help. Stay calm. It is scary when nothing is for sure, but you’ll soon have a plan and it will fly by! Best of Luck! And Thank you for the good wishes and thoughts for me. I do appreciate you!

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bradandrus76 | @bradandrus76 | Mar 9 5:10pm
In reply to @cmcguire10 "My Dr told me to stay away from Dr Google, but to use sites like Mayo..." + (show)
@cmcguire10

My Dr told me to stay away from Dr Google, but to use sites like Mayo .org, Cleveland clinic . Org, Harvard, Mt Sinai etc. as long as it ends in Org and not COM. We all have done it and scared ourselves sick! Best answers will come from your actual doctors. If you don't agree with them ask for a second opinion. You have to be comfortable with what YOU decide to do. It is scary, but once you're done and healing you will feel better. Just remember to breathe and relax your mind. Great you are working out. You shouldn't loose anything you've gained, you will just have to take a small break for about a month or two but the walking will help! Good thoughts and prayers sending to you!
Cindy

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Hello. So I got the results of the biopsy. Well differentiated adenocarcinoma lepidic pattern. It is what I had narrowed it down to myself. Follow up with pulmonologist Tuesday. Thanks for being here.

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Mentor
Lisa, Volunteer Mentor | @lls8000 | Mar 10 11:27am
In reply to @bradandrus76 "Hello. So I got the results of the biopsy. Well differentiated adenocarcinoma lepidic pattern. It is..." + (show)
@bradandrus76

Hello. So I got the results of the biopsy. Well differentiated adenocarcinoma lepidic pattern. It is what I had narrowed it down to myself. Follow up with pulmonologist Tuesday. Thanks for being here.

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@bradandrus76, I’m so sorry to hear this. But it is very encouraging to know that your doctors trusted their instincts and found this at an early stage. While this is never easy, knowing about it early certainly gives you an excellent outlook on the future. You’ll have some difficult days ahead, but you’ll get through it. How are you processing the news? Do you have family/friends support?

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bradandrus76 | @bradandrus76 | Mar 10 7:33pm
In reply to @lls8000 "@bradandrus76, I’m so sorry to hear this. But it is very encouraging to know that your..." + (show)
@lls8000

@bradandrus76, I’m so sorry to hear this. But it is very encouraging to know that your doctors trusted their instincts and found this at an early stage. While this is never easy, knowing about it early certainly gives you an excellent outlook on the future. You’ll have some difficult days ahead, but you’ll get through it. How are you processing the news? Do you have family/friends support?

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Handling it okay. It was literally the exact diagnosis I was expecting for months now. Still difficult to officially see it. I have support but like so many have told me they just don't fully understand. They get upset at times and seem to believe they would handle it better. Being told to stop worrying is so frustrating. Some have come around now that the diagnosis is concrete. Most of these people have no experience with cancer but it's hard not to be a little angry with their callousness.

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1 reply
Mentor
Lisa, Volunteer Mentor | @lls8000 | Mar 11 1:29pm
In reply to @bradandrus76 "Handling it okay. It was literally the exact diagnosis I was expecting for months now. Still..." + (show)
@bradandrus76

Handling it okay. It was literally the exact diagnosis I was expecting for months now. Still difficult to officially see it. I have support but like so many have told me they just don't fully understand. They get upset at times and seem to believe they would handle it better. Being told to stop worrying is so frustrating. Some have come around now that the diagnosis is concrete. Most of these people have no experience with cancer but it's hard not to be a little angry with their callousness.

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@bradandrus76, Rest assured that however you are handling this is the right way for you to handle it. We're all different, and no one can tell you how to feel or what to think. I found/find that some of the people that want to minimize the diagnosis are trying to make you feel better about it, or maybe just make themselves feel better about it. It's a difficult time, and it will get easier.
I hope you have a treatment plan soon, so you can move past the waiting game. Take care.

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cmcguire10 | @cmcguire10 | Mar 11 1:37pm

Well now that you have the diagnosis, I know I had nervousness but also felt okay knowing what it was. Then went into the planning stage. It is hard for people to understand that have not dealt with someone with cancer before. I know some of my family acted like it was no big deal. Others cried and questioned lots of things. The ones that acted like it was no big deal told me they wanted to be strong for me. Honestly I’d rather have them be that way. The other way, I’m trying to comfort the ones who are crying and end up not wanting to tell them anything. Others, just don’t know about cancer or fighting it. That’s why this group is so helpful!

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1 reply
bradandrus76 | @bradandrus76 | Mar 11 2:23pm
In reply to @cmcguire10 "Well now that you have the diagnosis, I know I had nervousness but also felt okay..." + (show)
@cmcguire10

Well now that you have the diagnosis, I know I had nervousness but also felt okay knowing what it was. Then went into the planning stage. It is hard for people to understand that have not dealt with someone with cancer before. I know some of my family acted like it was no big deal. Others cried and questioned lots of things. The ones that acted like it was no big deal told me they wanted to be strong for me. Honestly I’d rather have them be that way. The other way, I’m trying to comfort the ones who are crying and end up not wanting to tell them anything. Others, just don’t know about cancer or fighting it. That’s why this group is so helpful!

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It's the flip flopping that is really bothering me. Going from all nonchalant about it making me wonder if they even care too now I'm the one having to be strong for them because they are scared. Where was that for me when I was struggling to come to terms with this. Anyway humans will be humans I guess. I'm glad I have these groups or I would feel completely alone in this. Thank you all for your support and understanding. 🙂

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