Diagnosed with Atypical Parkinson's? What does this really mean?
I have been diagnosed as having Atypical Parkinsons.Is that something that goes away for a month or so and then comes back for a month or so or do i need to find a different Neurologist?
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@lisalucier I go back to neurologist on 30th of this month and find out what they are gonna do.They don't know i read their comments on Follow My Health yet.I will be asking questions then.I can barely type with my hands shaking so bad.
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3 ReactionsHi, @larry68 - so sorry to hear about the passing out and stuttering you experienced in the waiting room.
Glad to see you've connected with @hopeful33250 and @emmit about your diagnosis of atypical Parkinson's.
You may notice that I started a new discussion with your post because I thought this topic of atypical Parkinson's merited it and that others might have similar questions.
Fellow members such as @bmfoster @larryh123 @eojeda1 @patriciajean may have insights to share about atypical Parkinson's and what that means to a person's life and health.
Will you be undergoing therapy of some kind for the gait and balance issues you mentioned, larry68?
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5 Reactions@emmit Thanks,i am gonna do that.!st neurologist i had told me there was nothing wrong 5 minutes after i passed totally out in the waiting room and i couldn't talk to him because i was stuttering so bad
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3 Reactions@larry68 have you seen a movement disorder specialist ? this is different than just a neurologist. They have specific evaluations they conduct. They are neurologists but specialize in movement disorders such as Parkinson's. I had a regular neurologist I was seeing and he misdiagnosed me. he also could not answer all my questions about Parkinson's. So, on advice from others I found a movement disorder specialist
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7 Reactions@hopeful33250 my gait and balance is off all the time but my stuttering comes and goes.My head doesn't hurt all the time but involuntary jerks are all the time.
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1 ReactionHi @larry68
This is an interesting question. You might want to check with your provider as to what "Atypical Parkinson's" actually means.
Do your symptoms change from day to day? Do Parkinson's meds (like Carbidopa/Leodopa) help with your symptoms? How is your gait and balance?
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