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DiscussionDiagnosed with Atypical Parkinson's? What does this really mean?
Parkinson's Disease | Last Active: 6 hours ago | Replies (22)Comment receiving replies
Replies to "@raybepko I can understand your description of a nightmare and a roller coaster with some highs..."
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@hopeful33250 Getting her the care she has a right to and deserves. Especially getting her meds on time. But also things like food that is not edible or geared to her needs. And the fact that she can only get a shower once per week. When they tell me they’re understaffed I reply that it is an explanation but not an excuse. And it is their responsibility, not the patient’s. Aside from that, maintaining my own health and figuring out how I’m going to pay for skilled nursing care when she is transferred there as it is inevitable.