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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@raybepko
I appreciate your advocacy for your wife's medical care. It is important to advocate for ourselves and for our loved ones who are unable to advocate for themselves.

What sort of treatments has your wife had as a result of your advocacy?

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Replies to "@raybepko I appreciate your advocacy for your wife's medical care. It is important to advocate for..."

@hopeful33250 Proper diagnostic work up followed by medication specific to her individual needs in all areas. PT and OT with therapists knowledgeable about the disease she is now in rehab after a fall and will most likely be transitioning to long term care as I can no longer keep her safe at home even with caregivers. She is in what I have come to see as the “least worst” facility in our area. It’s bad, doesn’t meet her needs, is understaffed, has just awful food, and doesn’t address related mental health issues at all. And yet it’s still better than all the other at least in terms of not being as bad. Hence, the least worse. I find myself having to spend more time and energy than when I was her primary caregiver in order to keep her safe in the facility and continually advocate for her needs, like getting her medication on time getting her up and active, etc. Overall, I would describe it as a nightmare and a roller coaster of some highs and many more lows.