Diagnosed with Atypical Parkinson's? What does this really mean?

@methel Yes,they both are affiliated with major medical centers.One is in Ok. and the other Texas.

@larry68
Maybe you already have the right doctor, but if I were wondering, I would look for a neurologist affiliated with a major medical center which treats these diseases. My reasoning is that I might get more help managing the disease and possibly access to a clinical trial that might help me and others.

@larry68 - confirming you mean corticobasal degneration?

It is my understanding that CBD can only be diagnosed on autopsy. Yes, there are lots of Parkinsonisms Such as CBD, lewy body dementia, PSP, etc. And yes, there are plenty of signs of symptoms, which seemed to occur with patients who have CBD and that is how the working diagnosis is made until they can actually sample your brain. Good luck

@methel CBD is what they are guessing what i have.I have took every scan and test but the skin biopsy.

@goatgirl28 Almost 71

@chillier I have been seeing Neurologist since 2022 and no meds or diagnosis as of yet,just a bunch of maybes.Thats why i don't get any meds for my pains in shoulders and legs.

@chillier
I am sorry to hear of your friend's diagnosis of Atypical Parkinson's. I'm sure that she and her family appreciate your interest in learning as much as possible about this disorder.

What sort of symptoms was she having prior to her diagnosis? Have any treatments been prescribed, like medication or physical therapy?

Larry, I will have to ask her about the official diagnosis she received from her neurologist.

@chillier I went to a MDS NEurologist about 3 days ago and they did the normal test in the office and looked at what other Neurologist sent me to test for and her conclusion was so far its maily old age/maybe Essential tremors but my Petscan hasn't results have not been posted yet.She said she really wanted to see that one.I go back in 2 months to find out what she thinks.Meanwhile she put me onPrimidone to calm the tremors.Time will tell.I have already with 1st Neurologist had a EEG,MRI,Catscan,Datscan,Cognitive test and they all come back as normal for my age.They are stalling on the Petscan for some reason.I know at least i have Essential Tremors but they all can misdiagnose.Its just hard after all i have read.Not faulting either.Now,did they actually tell your friend that she was diagnosed with Atypical Parkinsons or did she or he go to their website and read their notes?Those are just their thoughts till you get all the test done...js Because i did that and was tripping out till my next appointment and my wife jumped their butts about posting that.Thats when i found out its nothing yet. 🙂