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Diagnosed with Atypical Parkinson's? What does this really mean?

Posted by larry68 @larry68, Jul 7 9:30am

I have been diagnosed as having Atypical Parkinsons.Is that something that goes away for a month or so and then comes back for a month or so or do i need to find a different Neurologist?

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Teresa, Volunteer Mentor | @hopeful33250 | 1 hour ago
In reply to @larry68 "@hopeful33250 Michael J Foxx forum is all i know." + (show)
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@hopeful33250 Michael J Foxx forum is all i know.

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@larry68
The Davis Phinney Foundation is also a very good website to check for information about PD. They have monthly webinars that are posted on YouTube. You might find their website helpful. Here is a link to their website: https://davisphinneyfoundation.org/

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ichbindck | @ichbindck | 2 hours ago
In reply to @larry68 "Has anyone seen this?Is it true or bs?That failed kidneys is where PD starts." + (show)
Profile picture for larry68 @larry68

Has anyone seen this?Is it true or bs?That failed kidneys is where PD starts.

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@larry68 Never heard this. I have CKD stage 3b for over 10 years and have PD. Neither my Neurologist nor my Nephrologist ever connected the 2.

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ichbindck | @ichbindck | 2 hours ago

Definitely need to see a Movement Disorder Specialist Neurologist, not a general Neurologist

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larry68 | @larry68 | 13 hours ago
In reply to @hopeful33250 "@larry68 I've never heard of this. You might check with your neurologist about this theory." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@larry68 I've never heard of this. You might check with your neurologist about this theory.

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@hopeful33250 Michael J Foxx forum is all i know.

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Teresa, Volunteer Mentor | @hopeful33250 | 14 hours ago
In reply to @larry68 "Has anyone seen this?Is it true or bs?That failed kidneys is where PD starts." + (show)
Profile picture for larry68 @larry68

Has anyone seen this?Is it true or bs?That failed kidneys is where PD starts.

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@larry68 I've never heard of this. You might check with your neurologist about this theory.

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raybepko | @raybepko | 17 hours ago
In reply to @bmfoster "@raybepko Your honesty is refreshing and right on the money. I DO try and stay positive,..." + (show)
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@raybepko
Your honesty is refreshing and right on the money. I DO try and stay positive, but there are lots of negatives and obstacles to maneuver around on a daily basis. It is what it is and I frequently remind myself that - pain is inevitable, but suffering is optional. I try not to stay in any degree of self-pity for long - it doesn't accomplish anything and only makes me fearful and miserable. I've learned what I MUST do to stay upright - this summer heat will lead to a face plant if I don't stay hydrated or try to do any activities that require exertion if its 85 degrees or higher outside. I've told some friends about my problems and they know if they ever find me "down" to put my feet in the air - don't start CPR:)) Gut issues and orthostatic hypotension are the worse symptoms to date and my gait and voice issues are running a close second. Trying to live one day at a time. Hang in there buddy - we just have to do the best we can. B

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@bmfoster Thanks. Hang in there we must. And will.

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larry68 | @larry68 | 21 hours ago

Has anyone seen this?Is it true or bs?That failed kidneys is where PD starts.
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larry68 | @larry68 | 23 hours ago
In reply to @goatgirl28 "@larry68 Ouch! Not the answer I was hoping for. I too am 70 and, while I..." + (show)
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@larry68 Ouch! Not the answer I was hoping for. I too am 70 and, while I am not afraid of going, I still have stuff to do. Who knows, by getting PD, we proved we are not average. 🙂

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@goatgirl28 I ain't scared of going.I just don't want to be a burden.I have CBD Atypical Parkinsons.I guess we definitly are not average.I have a lot of stuff to do and only a few years to get it done.

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goatgirl28 | @goatgirl28 | 1 day ago
In reply to @larry68 "@goatgirl28 70" + (show)

@larry68 Ouch! Not the answer I was hoping for. I too am 70 and, while I am not afraid of going, I still have stuff to do. Who knows, by getting PD, we proved we are not average. 🙂

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