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@methel CBD is what they are guessing what i have.I have took every scan and test but the skin biopsy.

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@larry68 - confirming you mean corticobasal degneration?

@larry68
Maybe you already have the right doctor, but if I were wondering, I would look for a neurologist affiliated with a major medical center which treats these diseases. My reasoning is that I might get more help managing the disease and possibly access to a clinical trial that might help me and others.