Diagnosed with endometrium adenocarcinoma few days ago

@pema2, that's a lot to deal with all at once.

You're wise to coordinate the two specialities: Cardiology and Oncology. Mayo Clinic offers expertise in addressing heart problems and cancer (called cardio-oncology), potential or current issues. The Cardio-Oncology Clinic (https://www.mayoclinic.org/departments-centers/cardio-oncology-clinic/overview/ovc-20442193) evaluates people prior to cancer treatment and patients who have experienced side effects due their treatment. That might be an option where you're being treated too.

In addition to scheduling surgery, your oncology team should be aware of your cardiac condition when considering future cancer treatments.

How long ago was your cardiac surgery? I look forward to hearing how things proceed.

Good luck with your 2nd chemo.

I had the watchman device implanted about 2 1/2 weeks ago unfortunately at the same time other things were developing which resulted in me getting a cat scan vaginal ultrasound and then a biopsy leading to the diagnosis of uterine .cancer. It has been very challenging to get the doctors in this area to communicate with one another and much has been left up to me the patient to try to ensure that there is coordination in the medical services being provided. I don’t know of anything like the team approach you’re speaking of here where I live.

Hi, it took me for months to schedule the TAHBSO

sorry, it is four months not for

I was diagnosed with endometrial adenocarcinoma on Nov 14. I started with one episode of vaginal spotting in early October. Saw my gynecologist who scheduled a transvaginal ultrasound. Waiting for that took the longest. I had that on Nov 4, my gynecologist saw me immediately after the ultrasound. It showed my endometrium measured 10.5 mm, also a complex ovarian cyst, and uterine polyp. He drew a C-125 that day and scheduled the biopsy for 5 days later. C-125 was slightly elevated, he said to make an appointment with the gene oncologist. I got an appointment 12 days later. Did the endometrial biopsy, but the results weren’t back when I saw the oncologist. He was very upset with that and gave me some scenarios depending on the results. He told my gynecologist office to call the lab and tell them he wanted those results that day, as I had the biopsy 6 days ago. About 2 hours later my gynecologist called and gave me the results. The oncologist called me within 10 minutes and said I needed the hysterectomy, removal of tubes, ovaries, entire cervix and lymph nodes for staging. My surgery was scheduled 15 days later. So this week, , on the 30, I will be having surgery. My emotions have gone from panic attack to learning as much as I can. I have gotten cardiac clearance and clearance from my primary care. My primary care has helped me through this emotionally, but she knows me the best. The hardest part has been telling my daughter. She is adopted, and I adopted her as a single parent. My parents and all my siblings have passed. I just turned 65, and my daughter is 27. My primary care had me call her after I told my daughter, who lives and works 750 miles away. I am active in my church, and have a strong faith, but still have been struggling. My daughter will be home this Sunday to be with me during surgery and recovery. She has a significant other, but they are not married. She plans on staying through Christmas as she can work remotely. Her boyfriend may join us for Christmas. I am grateful to have found this group as I needed to be in contact with others going through the same thing. I just retired in September after 44 years as a nurse. I don’t know if being a nurse is of value or more hindrance. I know to much.

@jlb333 Janis, I read your post in another discussion but noticed that you had posted here.

Welcome to Mayo Clinic Connect. We are a supportive group and other members in Gynecological Cancer will come in and provide their stories and support for you.

First let me say that I have been where you are right now. I had just retired in May 2019 and the diagnosis of endometrioid adenocarcinoma was made in July of that same year. Why is that when we retire and look forward to new adventures in our lives that such things pop up? It's not how I imagined the beginning of my retirement years. My question is rhetorical and there isn't an answer. It is the reality for me and you and a few other people I know.

The emotions that you are cycling through including anxiety and panic are what I felt and many others who have come here to Connect have shared. So I understand how frightened you are feeling. Does your mind settle down for a little while and then cycle back to this new reality? And then the anxiety spikes again? I'm hopeful that your endometrial cancer was caught very early. You got yourself into your doctor at the first sign of spotting and started the process of getting a thorough check. As a nurse for 44 years I can see why you are in a place where you feel you know too much. My partner is a retired physician and I think he was more frightened than me for the very reason that you stated.

This is way too frightening to go through on your own and so I'm relieved for you that your daughter and her boyfriend will be with you during your surgery and recovery and that your daughter will stay through Christmas. Your faith and your church family will also be by your side if not in person then in spirit and in prayer.

I will say a healing prayer for you on the 30th. How are you taking care of yourself and how are you feeling today?

@pema2 I thought I would check in with you today.

Do you have any new information that you'd like to share? I am hopeful that with your own advocacy your doctors are helping you figure out when and how to go forward with the uterine cancer diagnosis.

I am on same journey as you, sounds like things are moving faster for you I started having bleeding mid May, was seen by gyn 6/1/22, hystoscopy that lead diagnosis adenocarcinoma on 6/27/22, sent to Oncology appt. 7/14/22 then hysterectomy not till 8/29/22 was in pain going down legs during that time so not so great. Was origianlly told to only have 3 brachy treatments. However, once lapo total surgery was completed , was Figo1 stage 3A because had gone through to serous liaison so wash had cells in it. Felt fantastic after hysterectomy went back to work after 2 weeks 10 lb weight limit. Felt cured of everything at that point and lasted till treatment started. At 2 week post-op was told no tube, lymph node, or tube involvement; but, CA-125 was high so treatment plan is 3 chemo taxol/carbo, originally told 8 external radiation, and 2 brachy treatments, 3 more chemo however, they have changed it to 25 external possibly but was told would be in remission at that point.
Have completed first 2 chemo treatments as of Monday. Can't say they make me feel well, but tolerable not taking nausea medication but aliitle queasy, 1 st treatment day 13 hair started coming out, so 3 days later asked my daughter-in-law to just shave it off. Didn't like feel in shower of hair falling all over me. Am much happier with gone. Be sure to protect hands and feet with ice if you do chemo Taxol, can causes neuropathy otherwise. Am using heatpad if achy, clartin for bone pain helps, last time started feeling someone normal around time hair started coming out, was not using any pain meds tylenol last week before this time. Oh, have found like another mentioned Chemo seems to make me constipated so drinking alot of water and eat lots of vegs, dried fruit helps me with oatmeal and protein. I take off a few days after from work, work actually makes time go by faster and feel better moving around normally. Luckily, I have a job that I walk some, sit some, I have enough energy to date anyway. I think my kids would like me to retire. time will tell on that.
Don't worry about hysterectomy you will feel better. Your treatment plan may be different than mine. Many have only had 1 or the other, and many the same as I. Take care.

Hi
I’m meeting the gyna oncologist tomorrow (November 28th). Don’t know what to expect, getting nervous now.