I have been dealing neuropathy for almost 6 years now. My symptoms were mild for 1 year. I could tolerate it. I feel that I am back to square 1.
Some of my background. The neurologist and Drs I have seen have not given me a definite diagnosis. I say I have autonomic neuropathy. 24 years ago I was diagnosed with Non Hodgkins Lymphoma and have been in remission for 22yrs. I have numbness, burning, tingling and at times extreme cold on JUST the right side of my body. Starting from head all the way down to my foot. I had the gastric sleeve done, hoping losing weight would help. I was on Gabapentin then switched to Lyrica and now back on Gabapentin 900mg 4 times a day.
I also take Lortab, Lorazepam and Sertraline. My symptoms have been getting worse over the past yr and 1/2. I have had syncopal episodes (seems to happen when my nerves are extremely pinched or extreme pain), rashes, extreme arthritis and constant headaches. Again ALL on my right side.
I want out of this body. I hate that I look fine but I am dying inside. I cry more now. I hate not being normal. Being able to live without pain, being exhausted, having a foggy brain. I feel at the end of my rope.
How does everyone get up in the morning? How do you work a full time job? How do I continue working as a nurse. I feel like I am letting every down. I am depressed all the time.
I need someone to understand how it feels.