Deja vu and weird feelings

Posted by lindsayv05 @lindsayv05, Jul 31, 2025

For the past few years, I would get these déjà vu like feelings, and it would feel like arise in my stomach and a familiar scene playing out. It would only last a few seconds, and once it was gone, I could barely remember what it was that I thought of. It’s not necessarily a bad feeling. It’s actually kind of cool. Recently, they started to happen more frequently. A couple of the times it did seem like I had a metallic taste in my mouth, and it usually happens around my hormonal cycle. The past couple of days I’ve had a few, and I just feel really down and out. My doctor gave me Topamax to try and I’m gonna start it tonight. I just wondered if anybody else had any similar stories and what has worked for them.

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Hello all, I had the EEG yesterday. Results will not be ready for a couple of weeks. I will see the neurologist in a couple of weeks. Hopefully I will get some answers. Today alone I have had three episodes. They leave me a bit shaken. I am somewhat disconcerted about this. Does this sound familiar to anyone? Does it sound like temporal lobe epilepsy?

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@annie394
Hi Annie,
This sounds so familiar to me, and I imagine to many others in our group as well. I've had the same experience – seizures happening hours after the EEG or even the next day. Once I completed the exam and finally relaxed, that's when a seizure would come.
Now that I know this pattern, I try to fill my day before an EEG with activities to keep my mind occupied and not think too much about the exam itself. It really helps me manage my anxiety.
Trying too hard to make something happen can sometimes work against us!
Fingers crossed for you. 🙏
Chris

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