Dealing with adult son with mental health: Parents want to share?

Posted by briarrose @briarrose, Oct 6, 2024

My 39 y. o. son suffered 2 major losses since April 2022 & has never been the same since. He is under the care of a psychiatrist & taking trintellix & adderall which are not helping. Gradually he became more & more isolated and suspicious of all - including his parents. His therapist for 2 years recently started a new position so he has none. And not interested in getting another. I believe he checks off almost every symptom of Paranoid Personality Disorder. I live in the east, he's in the midwest, not married, living alone. I must walk on egg shells with him, an innocent remark becomes an argument. He is never wrong, but everyone else is. Recently we had a blow up over the phone, he didn't like the way I asked him a question, saying I was "abusive"...he now refuses to have any contact with me. He is my only child, our entire lives we have always been so close. His Dad & I are divorced for 17 years. His relationship with him, worse than mine. Hasn't seen him in 1 yr. I am so depressed & heart-broken. I have reached out kindly to him since the blow up & no response. I can't talk to his psychiatrist due to HIPPA laws but thought I could...but he can not talk to me about him. His mental health clinic will not allow it. He did a complete 360 with his life, unrecognizable to everyone who knew & loves him. He is very paranoid. I don't know what to do - how to help him and the longer he doesn't contact me the worse it will be.
This is impacting my entire life...I am 69 y.o. and so very sad my beautiful son has now developed this truly awful personality disorder.
Any thoughts from other Moms going thru this, greatly appreciated.

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@carla62

@suesea Thank you for sharing your perspective. My son is bipolar and I believe he is feeling everything your saying, but has never really told us. It is hard to watch your child suffering and feel helpless and to not be able to have a conversation about what we're all feeling. Your post has been so helpful to me. thank you for sharing!

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Thank you. I know it's horribly difficult. I'm glad my post helped you, and I want you to know it can get better. 🩷

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@suesea

Hello. I'm not a parent with a child in your situation. I'm a child that has gone through years mental health issues and I have a master's in psychology. First, your son loves you. It sounds presumptuous, but he is hurting and so he is lashing out. It doesn't mean he doesn't still love you or need you, and I'd suspect he hates that his life is causing you stress and pain.

I was a straight A student and athlete in University when I had a breakdown. I became paranoid of even the fumes coming through the vent in my dorm room. I was a residential advisor at the time, helping others adjust, while I was silently falling apart. This started after major losses in my life - divorce and death of loved ones, but in all reality, due to trauma during my childhood, I had struggled with feelings of being alone, or lonely, even with others.
Eventually, I reached out for help after a drastic attempt to take my life. It was a pressure that built up in me so great that I couldn't handle it or cope. I'm now older and looking back. The only thing that my family or friends could do to help is simply be there, listen, and try to be as understanding and supportive as possible. It may be you can't reach him through rational means and common sense conversation -- and definitely not with the old school "pull yourself up by your own bootstraps" speeches. My Dad was strict, military, and mental illness was simply weakness. I've since learned that's not the case at all.
What children experience during developmental stages of brain development does impact brain structure. Trauma can permanently change the brain - abuse, verbal and physical, stress, and so many things affect brain development. Sometimes, the trouble doesn't fully present itself until later in life. It may be a type of survivability where we are impacted by trauma and can only cope with it years later as adults. Children, although people say they are resilient, are sponges and the brain wires itself to survive.
Obviously, I don't know your son's history, but if he had a difficult time as a child, tried drugs, or other unhealthy coping mechanisms, it only compounded and complicates life when we try to fit into society as "normal" functioning adults later.
I would recommend continuing to just love him and listen to him without criticism or judgement. He is probably trying to fight through an inner struggle that he may not even be able to put into words.
Also, please don't only assume that depressive or irresponsible behavior is simply something a pill will remedy. I've tried so many medications and very few helped. One thing that is good is genesight therapy. It's a test that a primary doctor can order that will let him know what medications will work the best with his genetic makeup. That way he won't feel like a test subject while cycling through ineffective options.
I was recently diagnosed with Frontotemporal Dementia. This illness presents with behavioral problems, and it can be mistaken for mental illness. I was diagnosed bipolar (among other things by therapists who just really want to put a label on behavior and send you off with a pill). It may be an MRI of his brain would be helpful to see if anything more is underlying his emotional and behavioral difficulties. A neuropsychologist might be a good option for him. Frontotemporal Dementia can start at a younger age. I'm not saying this to say that's what it is or to cause you further concern, but to let you know there can be more going on in his brain that is causing behavioral changes, and it is worth investigating.

I hope he comes around soon to you to comfort you and let you know he loves you. Please realize that depression can suck you into a completely warped and self-absorbed world where you are simply struggling to survive each day, so it becomes harder and harder to be thoughtful of the needs of others because it feels impossible to add more to the load your already carrying. I'm not sure if I should send this to you because it's not really my place, but as a child whose been through hell, I can say I never stopped loving my parents. I just hated myself, my thoughts, my struggles, my anxiety, and the paranoia. Nobody wants to live that way or be seen that way, so we withdraw. However, your love is a strength to him -- even if he doesn't show it. It's not fair; it's difficult for both of you. Just please hold on and be there for him -supportive, kind, patient, and without judgement. I'm a Christian, so I will say pray for him, don't quit on him, it's a rough road, but you can make it through in time. I hope in some way this was helpful.

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suesea:
Thank you kindly for sharing your story with us parents who are struggling with their adult children's (it seems a lot of sons) mental illness.
Your experiences, views, perspectives, insight were all spot on. Everything you wrote is so very true. And I can personally relate to so much of what you had to say - in relation to my own son who continues to have great, mental health difficulties. Yes, I feel heart broken and helpless. He is not listening to anything I say...but right now I have stopped my "you should's" and just go with the flow as long as he is not a danger to himself or others. I love him unconditionally and this he knows. I am his # 1 fan. Always.
But back to you, I don't want to rehash here what I have already written many times.
I am not surprised you have a Master's in Psychology. What you wrote is a keeper for sure.
Many thanks again for taking the time to write your story and give us loving and heart broken parents (mostly Moms it seems) such insightfulness and hope!
I wish you only the very best as you cope with FT Dementia. I hope you are with an excellent team of health care providers who specialize in this brain disorder & are giving you the very best optimal health care. I truly admire you...you clearly know of what you speak.
Your last line stated "I hope in some ways this was helpful..."
You more than accomplished your mission in this post!
A loud shout out - YES!! It was MORE than Helpful!
Be well. Peace 🙂

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@briarrose

suesea:
Thank you kindly for sharing your story with us parents who are struggling with their adult children's (it seems a lot of sons) mental illness.
Your experiences, views, perspectives, insight were all spot on. Everything you wrote is so very true. And I can personally relate to so much of what you had to say - in relation to my own son who continues to have great, mental health difficulties. Yes, I feel heart broken and helpless. He is not listening to anything I say...but right now I have stopped my "you should's" and just go with the flow as long as he is not a danger to himself or others. I love him unconditionally and this he knows. I am his # 1 fan. Always.
But back to you, I don't want to rehash here what I have already written many times.
I am not surprised you have a Master's in Psychology. What you wrote is a keeper for sure.
Many thanks again for taking the time to write your story and give us loving and heart broken parents (mostly Moms it seems) such insightfulness and hope!
I wish you only the very best as you cope with FT Dementia. I hope you are with an excellent team of health care providers who specialize in this brain disorder & are giving you the very best optimal health care. I truly admire you...you clearly know of what you speak.
Your last line stated "I hope in some ways this was helpful..."
You more than accomplished your mission in this post!
A loud shout out - YES!! It was MORE than Helpful!
Be well. Peace 🙂

Jump to this post

Thank you for your kind words. I know it's a hard struggle, but the love is there. It's just buried under too much pain sometimes. Your son is blessed to have you. My Mom was my best friend. I lost her to breast cancer in 2005. I hope and pray for you and your son's healing. Life is so short. We do need to treasure each other in the good and the bad. Thanks again. I wish you all the best as well. 😊

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How old is your son? He might also be depressed! Get a therapist for yourself , work on yourself. Give any ideas you might have about contact or helping your son to the experts and see what they recommend. Get help with this from your side....

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@suesea

Hello. I'm not a parent with a child in your situation. I'm a child that has gone through years mental health issues and I have a master's in psychology. First, your son loves you. It sounds presumptuous, but he is hurting and so he is lashing out. It doesn't mean he doesn't still love you or need you, and I'd suspect he hates that his life is causing you stress and pain.

I was a straight A student and athlete in University when I had a breakdown. I became paranoid of even the fumes coming through the vent in my dorm room. I was a residential advisor at the time, helping others adjust, while I was silently falling apart. This started after major losses in my life - divorce and death of loved ones, but in all reality, due to trauma during my childhood, I had struggled with feelings of being alone, or lonely, even with others.
Eventually, I reached out for help after a drastic attempt to take my life. It was a pressure that built up in me so great that I couldn't handle it or cope. I'm now older and looking back. The only thing that my family or friends could do to help is simply be there, listen, and try to be as understanding and supportive as possible. It may be you can't reach him through rational means and common sense conversation -- and definitely not with the old school "pull yourself up by your own bootstraps" speeches. My Dad was strict, military, and mental illness was simply weakness. I've since learned that's not the case at all.
What children experience during developmental stages of brain development does impact brain structure. Trauma can permanently change the brain - abuse, verbal and physical, stress, and so many things affect brain development. Sometimes, the trouble doesn't fully present itself until later in life. It may be a type of survivability where we are impacted by trauma and can only cope with it years later as adults. Children, although people say they are resilient, are sponges and the brain wires itself to survive.
Obviously, I don't know your son's history, but if he had a difficult time as a child, tried drugs, or other unhealthy coping mechanisms, it only compounded and complicates life when we try to fit into society as "normal" functioning adults later.
I would recommend continuing to just love him and listen to him without criticism or judgement. He is probably trying to fight through an inner struggle that he may not even be able to put into words.
Also, please don't only assume that depressive or irresponsible behavior is simply something a pill will remedy. I've tried so many medications and very few helped. One thing that is good is genesight therapy. It's a test that a primary doctor can order that will let him know what medications will work the best with his genetic makeup. That way he won't feel like a test subject while cycling through ineffective options.
I was recently diagnosed with Frontotemporal Dementia. This illness presents with behavioral problems, and it can be mistaken for mental illness. I was diagnosed bipolar (among other things by therapists who just really want to put a label on behavior and send you off with a pill). It may be an MRI of his brain would be helpful to see if anything more is underlying his emotional and behavioral difficulties. A neuropsychologist might be a good option for him. Frontotemporal Dementia can start at a younger age. I'm not saying this to say that's what it is or to cause you further concern, but to let you know there can be more going on in his brain that is causing behavioral changes, and it is worth investigating.

I hope he comes around soon to you to comfort you and let you know he loves you. Please realize that depression can suck you into a completely warped and self-absorbed world where you are simply struggling to survive each day, so it becomes harder and harder to be thoughtful of the needs of others because it feels impossible to add more to the load your already carrying. I'm not sure if I should send this to you because it's not really my place, but as a child whose been through hell, I can say I never stopped loving my parents. I just hated myself, my thoughts, my struggles, my anxiety, and the paranoia. Nobody wants to live that way or be seen that way, so we withdraw. However, your love is a strength to him -- even if he doesn't show it. It's not fair; it's difficult for both of you. Just please hold on and be there for him -supportive, kind, patient, and without judgement. I'm a Christian, so I will say pray for him, don't quit on him, it's a rough road, but you can make it through in time. I hope in some way this was helpful.

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Wow. This is such great advice, blessings to you for sharing this! I pray it helps people on both sides of the situation. Love & praying

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Thank you. I hope it helps someone, too. 😊

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@suesea

Thank you for your kind words. I know it's a hard struggle, but the love is there. It's just buried under too much pain sometimes. Your son is blessed to have you. My Mom was my best friend. I lost her to breast cancer in 2005. I hope and pray for you and your son's healing. Life is so short. We do need to treasure each other in the good and the bad. Thanks again. I wish you all the best as well. 😊

Jump to this post

I understand suesea, so sorry for the loss of your beloved best friend Mom.
I get that as I am my son's best, forever, friend.
Ironically I was just diagnosed with breast cancer. Bilateral mastectomy on May 12th.
My son stayed with me for 2 weeks and was a wonderful, loving help. He certainly stepped up to the plate. Now back home and I do fear for him...so worried about him, not getting better and completely isolated. I know how unhealthy that is...
Thank you dearly for your prayers for him and myself.
Yes, life is short. We often forget that until we get a wake up call.
Be well. Be happy 🙂

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@briarrose

I understand suesea, so sorry for the loss of your beloved best friend Mom.
I get that as I am my son's best, forever, friend.
Ironically I was just diagnosed with breast cancer. Bilateral mastectomy on May 12th.
My son stayed with me for 2 weeks and was a wonderful, loving help. He certainly stepped up to the plate. Now back home and I do fear for him...so worried about him, not getting better and completely isolated. I know how unhealthy that is...
Thank you dearly for your prayers for him and myself.
Yes, life is short. We often forget that until we get a wake up call.
Be well. Be happy 🙂

Jump to this post

I feel for you. I'm sorry to hear about your diagnosis. I want you to know my sister had a double mastectomy as well due to breast cancer. She is doing great. It's hard, but having that surgery is smart. I hope you will have a good outcome like my sister. My Mom's breast cancer was found at stage 4. It had already spread. I was with her up to the very end, and I thank God for that. I'm also grateful that when my sister is checked, there's no sign of cancer. I hope you experience the same good outcome. I have known others who have done well after cancer treatment, so there's hope.

I'm not sure what to say about your son isolating. I've done that a lot. It's usually when I feel overloaded emotionally, but, I like to think that there is sun shining just beyond the clouds. In time, the moods can lift, and we come around to see better days. This is something I have learned over the years. The darkness passes. We just have to hold on and wait for the light to come back in again. I hope your son finds that strength to get through and realizes that there can be better days ahead. Sometimes depression pulls you down and it's easy to believe there's no way out, but there is. God's mercy is new every morning. Peace, strength, hope, and love to you and your son. 🩷

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I thank you all for the sharing of your trials with a adult son or daughter with paranoid personality disorder. I am dealing with the same; five years now my brilliant son was hospitalized several times and very non-compliant with medical intervention. It has almost destroyed my marriage and my life. We struggle on because we have no choice, It is just reassuring to hear the reality of how hard this is to come to grips with.
sniffy (my dogs name)

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Yes, sniffy...all our stories are sadly very similar. A wonderful, loving, fully engaged in life, adult child, "brilliant" as you say - suddenly (or perhaps always) becomes completely unrecognizable to their loving parents. What was, seems never to be again. A heart-breaking loss in so many ways, negatively affecting everything in our lives. Can we as parents ever be happy knowing our adult child is suffering so? Yes, we do struggle on.
If you haven't already, please try to suesea's recent post...she insightfully gives her perspective from the "other" side, the adult child who has been down the roads our mentally ill adult children are now travelling.
It is a very comforting, completely honest personal experience of her feelings while she was in the "place" our mentally suffering adult children are now. Her bottom line message? There is HOPE for healing & better days ahead. A measure of hope she wonderfully illustrates to us - the parents. Yes, there is reassurance to hear the struggles of so many of us...& the undeniable hard reality we must come to terms with. You are never alone.
One day at a time...everything in life changes sooner or later. All the best to you.

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