Day 66 of a migraine, please help!

Posted by danimartinez @danimartinez, 21 hours ago

Day 66 of my first migraine. I’ve been to multiple neurologists and headache clinics and had several ER visits. I’ve tried dozens of otc and prescription meds- nothing has touched it. My pan is a constant 7-8/10 24/7.

Currently on propranolol, gabapentin, memantine, ajovy, migranol otc supplement, magnesium, and daily electrolytes. No rescue meds have touched it.

MRI, CT, lumbar puncture, and many blood tests are all clean.

I’m beaten and debilitated. I can no longer work or function. Please help me! What has worked for you all?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

debbiejody | @debbiejody | 19 hours ago

I have them yo and take Excedrin Mirage

bernieboy | @bernieboy | 17 hours ago

Botox has helped me but not completely. No side affects. Bernie Boy

altilla | @altilla | 10 hours ago

I wish I could wave a magic wand but I can’t. My first migraine/cluster headache was 40 some years ago and lasted six months. I was finally hospitalized and given fiurinal (Spelling?). It broke the headache. I didn’t get another for years. They occasionally happen now but the severity is much less and the duration is short. Weather triggers mine.

mikayla | @mikaylar | 9 hours ago

6 yr/9 mos for me, every single day. Waiting phone conference on the 28th with interventional radiologist to tell me if I have leak in my spine. I am sorry for you and all of us suffering.

sandra777111 | @sandra777111 | 8 hours ago

I was on multiple prescriptions. Emgality once a month injection, and Zavespret taken at onset of migraines. Lots of magnesium, healthy diet, no preservatives etc. Best approaches for me have been join SILVER SNEAKERS at YMCA, do Senior Citizen exercises to help with balance. Like Tai Chi, Yoga and low weight/aerobic, medical Marijuana to help with inflammation, nausea and muscle spasms, meditation. Taking responsibility for my wellbeing. Daily attention to positive thoughts and attitude. You can do this!!!

jalo | @jalo | 7 hours ago

I am so sorry you are going through this. I was having severe, daily migraines for 8 years. Nothing helped much until I read a story about how nerve ending get worn down and the author was told to take 2 x 500 mls of magnesium daily. I tryed it immediately and within a week the pain was about half as intense and in 3 weeks I had pain free days.
I also removed myself from all of the meds I was on.
Good luck.

jrsjc | @jrsjc | 5 hours ago

Botox, Percocet, ice patch on my forehead and sleep. I also do Veypti, Topomax, Amptriptyline, as preventatives and a new pain drug called Journavx. That seemed to help. Good luck.