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Daughter is constantly ill? Is it nothing or a Gastro/ Auto Immune or?
I am concerned about my 7 year old daughter. She has started complaining about having a "bubble" feeling in her throat. She says sometimes it is big and sometimes it is not. She does not want to eat because when she does she feels nauseas. When she gets nauseas she gets the chills really bad and begins to shake, have diarrhea. This has been going on since the beginning of March. She is not getting good sleep because this "bubble' wakes her up, she has dark circles around her eyes, and she is constantly tired. We have brought her to out pediatrician, they did an x-ray which she thought looked normal, bloodwork which was fine and autoimmune tests (celiac) which was negative. They put her on antacids and said it must be acid reflux, but the medication has not helped and the bubble in constantly there and my poor daughter is not herself and completely run down. I also worry because she has been sick since the end of December every two weeks with some sort of illness. The end of December she had 103 temperature and was having labored breathing, headache and cough at times - they said it was croup. She seemed to get bette than two weeks later had bad headaches, tired constantly, had stuffed up nose, hard to breathe they said they could test her for pneumonia but when listening to her chest she sounded ok. She got better for a couple weeks than end of January she had bad headaches, congested, body aches and tired all the time. They said it was a sinus infection. She got better for a week and a half and then came home one night after school and started vomiting she threw up at least 15 times and could not even lay down or take a spoonful of water or it would come right back up. She got better for a week and now we are dealing with this feeling of a bubble in her throat, headaches and nauseas all the time and this has been going on since March 7th. Oh and after they did her stomach x-ray that looked normal the radiologist called my pediatrician to say there is a tumor on her hip they found so we need to bring her back and do a hip x-ray. They said after the hip x-ray that it seems to be benign. I just worry with her immune system getting kicked down all the time and in a house of 6 she is the only one getting sick constantly. I don;t know if it is a gastro issue, auto immune issue, or what to do. My daughter asks me if she is ever going to feel normal and good again?? I am truly at a loss as to what might be going on with her, but just want her to feel better. Any ideas?
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Hi @sandersmom,
I'd like to introduce you to Chelsea, @clockrem12, from Mayo Clinic Concierge Services.
Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly. They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit; and it's free.
Contact form: http://bit.ly/2nM3mr0
Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
Feel free to ask Chelsea any questions you might have about these services.
I'd also encourage you to view some of the videos in the About Kids & Teens group; here are 3 that might interest you and your daughter:
#AsktheMayoMom about IBD in Children: http://mayocl.in/2nYjuFU
#AsktheMayoMom about Pediatric Gastroenterology: http://mayocl.in/2phNaOK
Video Tour of Pediatric Pain Rehabilitation Center (PPRC): http://mayocl.in/1XuVAiX
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1 ReactionHi @sandersmom, I am a Mayo Clinic patient, and based on the successes I have experienced with Mayo since 09/2015, I plan on bringing one of my daughters to Mayo for a week within the next year or two for evaluation for several things. My daughter is nervous as well, but in realizing that they saved my life, in addition to returning quality of life to me, she knows that this is the best thing to do. As an aside, some of my doctors also treat children, and they are wonderful, calming people who have always made me feel comfortable.
At your daughter's initial appointment, they will do a thorough review with you and her, and at that time, they will also ask how long you are there. At that time, they will schedule specialist appointments, and they will also schedule as many tests and appointments as they can fit in during the timeframe you are there. Testing, whether lab or imaging, is all at the main Mayo campus, and they have the bandwidth to schedule tests very quickly. (There's no waiting for weeks and then driving all over the place to get to appointments like most of us are used to at home.)
For things to do...
• Be sure to walk around the first floor of the Mayo building. There's a museum with a small theatre in there. And if you can, stop by every floor of the Gonda Building, which has one side that's glass. There's a lot of artwork near the elevators and along the glass sidewall of the building on every floor.
• There's a small mall very close to the Mayo/Gonda buildings that you can walk to. Walk on the Peace Plaza to the Shops at University Square. There are a few restaurants in there, gift shops, clothing shops, and there's a fancy chocolate shop in there, too.
• There's also another mall called the Apache Mall that runs a shuttle all day between the hotels. (It's not as large as the malls I'm used to at home, but it's definitely more like a normal mall.) My favorite store in there is one that sells a bunch of kites.
• For movie theaters, there's a large multi-theatre complex near Super-Target and Lowe's just off of the main drag between Mayo and the airport. From Mayo Clinic, if you drive south on South Broadway, go past Soldiers Field on the right, keep driving past Walmart and Kohls on the left, and the road automatically turns into an expressway. Keep driving until you see the car dealers, Target, Lowe's, etc. on the left, and McDonalds up to the right, and get off at that exit. At the light at the top of the exit, take a left, and drive through a couple of lights. You'll see the entrance to this huge retail area on the left, and that's where you enter. I believe the theatre is called Galaxy 14 Cinema.
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4 Reactions@sandersmom, I will add one thing to @kdubois's excellent response. In addition to scheduling your daughter's tests very efficiently, they have the results almost immediately. This sometimes leads to schedule changes as the day progresses. Do not worry about this, they will direct you every step of the way.
The environment is beautiful. And the buildings are easy to navigate with helpers everywhere.
Rosemary
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4 ReactionsHi @sandersmom! I am happy to answer any questions you might have!
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3 ReactionsHI @sandersmom. I hope you were able to get some answers during your visit. I also hope you enjoyed Rochester. It is a little late but I was going to mention the Rochester Children's Museum as another place to visit while you are here. Best of luck.
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3 ReactionsI am also hoping that you have found some solutions. Thinking of you and your precious family!!
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3 ReactionsHello @shelly73,
Thank you so much for joining this discussion, and especially for the suggestions; we are delighted to have you as a member, and look forward to getting to know you. May I ask what brings you to Connect?
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