Anyone else on Daraxonrasib (RMC-6236)?

Posted by howleegirl @howleegirl, May 8 5:59am

Waiting for the approval for my husband to start daraxonrasib. (the new and exciting drug just fast tracked by the FDA) Doc says he's a great candidate for this drug. Anyone else on this? I know about the awful rash you get from seeing the senator on TV. Doc has also styopped all treatment since April 11th. THAT kinda scares me?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

mcoplien | @mcoplien | Jul 26 8:53am

In reply to @strongone21 "@mcoplien try to explore nearby states as that will give you the best possibility." + (show)

@strongone21 We were called Friday by our cancer center's Research Team. First step is to sign the consent. Will do that on Monday. Hoping to start Daraxonrasib next week!!!!

caldy53 | @caldy53 | Jul 25 9:14pm

In reply to @owlladycpl "My daughter has pancreatic cancer and has had the #2 chemo but it didn't help. Now..." + (show)

@owlladycpl I’ve heard it will be FDA approved soon

199 | @199 | Jul 19 12:16pm

In reply to @scullen53 "My brother has stage 4 pancreatic cancer, he has asked his MD about Daraxonrasib after it..." + (show)

@scullen53
from my understanding, the oncologist needs to be approved then the patient needs to be approved by Revolution Medicine.

Colleen Young, Connect Director | @colleenyoung | Jul 18 3:50pm

In reply to @hofhope "Thank you all for your discussions and helpful suggestions here. My fiancé was diagnosed with stage..." + (show)

@hofhope, how is your husband doing? Have they managed to get his ascites and pain under control? Is he also in the care of a palliative care physician for pain management and symptom management care?

Turkey, Volunteer Mentor | @tomrennie | Jul 14 8:43pm

In reply to @mcoviello "@tomrennie we spoke with the nurse, and she said to continue with the Lomotil and Imodium...." + (show)

@mcoviello That is awesome that her symptoms are much improved. Imodium helps me with my pancreatic cancer and chemo. Good luck with everything on Thursday. Please keep us posted?

mcoviello | @mcoviello | Jul 14 4:02pm

In reply to @tomrennie "@mcoviello Did the doctor provide you with any suggestions?" + (show)

@tomrennie we spoke with the nurse, and she said to continue with the Lomotil and Imodium. Her symptoms were much improved yesterday and today. We have an appointment on Thursday and hope to hear if there is anything further we can do.

mcoviello | @mcoviello | Jul 14 4:00pm

In reply to @strongone21 "@mcoviello the side effects trickled in slowly one by one for us. Diarrhea hopefully will get..." + (show)

@strongone21 Thank you for sharing this information.

Turkey, Volunteer Mentor | @tomrennie | Jul 14 3:23pm

In reply to @mcoviello "@tomrennie thank you! The diarrhea has been the only major side effect so far. If we..." + (show)

@mcoviello Did the doctor provide you with any suggestions?

strongone21 | @strongone21 | Jul 14 2:44pm

@mcoviello the side effects trickled in slowly one by one for us. Diarrhea hopefully will get controlled soon for her! Nausea and skin rash is ongoing for us (but manageable), though diarrhea, scalp rash, nails, mouth sores all came and went. No two patients are the same and many of them do not have a lot of skin rashes. Hope everything goes better for her once the diarrhea is controlled! Best wishes!

Turkey, Volunteer Mentor | @tomrennie | Jul 12 2:50pm

In reply to @mcoviello "@tomrennie thank you! The diarrhea has been the only major side effect so far. If we..." + (show)

@mcoviello Great idea on checking in with her doctor. Hopefully another more effective option will be discussed. Please let us know how the appointment goes ok? Since this is a new treatment, many folks are interested in learning through her experience. Thanks.