I a father to a 1.5 year old son who is suffering from Cystic Fibrosis (a very rare condition in Asia) with no specialty clinics or doctors available. I was wondering to get some help to find any kind of organization to include him in the medicine trials or any other option to ensure that he is provided the available treatment for all CF patients in world.
I would also like to take him to US or Europe for check up and treatment plan while I will not be able to pay for the treatment costs while we can afford the travel and accommodation costs for the duration.
Any kind of guidance will be appreciated.
Liked by Mamacita, Volunteer Mentor