← Return to CT Scan With Contrast showed "nothing" ... How common is this?

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CT Scan With Contrast showed "nothing" ... How common is this?

Neuroendocrine Tumors (NETs) | Last Active: Jun 4 6:41am | Replies (8)
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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@dadcue

Just wondering if you have met with any other specialists yet? How are you feeling?

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Replies to "@dadcue Just wondering if you have met with any other specialists yet? How are you feeling?"
Mike | @dadcue | May 24 9:55am

@hopeful33250

I feel well … thanks. I have seen a NET surgeon who works with the NET specialist who is an endocrinologist. A dotatate was positive. Chromagranin A and serotonin were elevated. Just the CT scan with contrast was negative.

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Mike | @dadcue | Jun 2 1:11pm

@hopeful33250

I just reviewed my clinical notes written by a NET specialist. There was a correction to the report on the CT-scan with contrast that I had recently. I won't post everything because it reads like a reprimand to the radiologist who interpreted my CT-scan with contrast.

"History of Present Illness:
3/25/2025: CTAP: Renal Stone surveillance: short segment wall thickening at mid abdominal ileal loop, 3.8 cm mesenteric node, 1.5 cm ileocolic mesentery; bilateral renal calculi (in retrospect the mesenteric lesion was visible in prior imaging back in 2020)

3/24/2026: Dotatate PET: RLQ mesenteric masses (3), 1 left perirectal lesion

5/11/2026: CTAP: Formal report states no evidence of primary NET or pathologic sized abdominal nodes. This is incorrect. There is 5mm left perirectal node (series 4 120/165); 32mm mesenteric mass (series 4, 78/165) (equivalent to series 1201 image 245/413 in DOTATATE PET 3/24/26) which was 28 mm on series 15 image 77/169 from CT of 2/16/22)

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I guess this is an example of why we need a NET specialist. My clinical note was complete with pictures with arrows pointing to various things.

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