@hopeful33250
I just reviewed my clinical notes written by a NET specialist. There was a correction to the report on the CT-scan with contrast that I had recently. I won't post everything because it reads like a reprimand to the radiologist who interpreted my CT-scan with contrast.
"History of Present Illness:
3/25/2025: CTAP: Renal Stone surveillance: short segment wall thickening at mid abdominal ileal loop, 3.8 cm mesenteric node, 1.5 cm ileocolic mesentery; bilateral renal calculi (in retrospect the mesenteric lesion was visible in prior imaging back in 2020)
3/24/2026: Dotatate PET: RLQ mesenteric masses (3), 1 left perirectal lesion
5/11/2026: CTAP: Formal report states no evidence of primary NET or pathologic sized abdominal nodes. This is incorrect. There is 5mm left perirectal node (series 4 120/165); 32mm mesenteric mass (series 4, 78/165) (equivalent to series 1201 image 245/413 in DOTATATE PET 3/24/26) which was 28 mm on series 15 image 77/169 from CT of 2/16/22)
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I guess this is an example of why we need a NET specialist. My clinical note was complete with pictures with arrows pointing to various things.
@dadcue
I appreciate the update. Seeing a NET specialist is important. You must be glad that you had this consultation. What is your next step?