CRPS

Posted by mam14 @mam14, Mon, Feb 4 10:10pm

I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.

Im so sorry you have been diagnosed with this horrible didease. You won't want to talk to me. I'm taking gabapentine. The onlyreason I know I works is if i miss a dose. Althoughi have been told they will never let me suffer. After 6 Drs I'm in screaming pain every waking moment. I sleep well fortunately. Ive been dealing with it for 2 years 4 months. Sorry i cant help you.

Liked by mlross4508

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I am asking for a friend who has a lot of female problems. She has familial hemiplegic migraines (inherited migraines that mimic stroke symptoms). Also has endometriosis, fibromyalgia, seizures, and abdominal migraines. She is on a lot of opioid pain meds that in my opinion are making things worse. I want to help her, but don't know how. She has had a hysterectomy 2 years ago and kept 1 ovary.

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@confused1955

Im so sorry you have been diagnosed with this horrible didease. You won't want to talk to me. I'm taking gabapentine. The onlyreason I know I works is if i miss a dose. Althoughi have been told they will never let me suffer. After 6 Drs I'm in screaming pain every waking moment. I sleep well fortunately. Ive been dealing with it for 2 years 4 months. Sorry i cant help you.

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@rsnowflake

I was diagnosed a little over a year ago. It started after a broken ankle. It never really healed. Got purple and blue..really bizarre. Went back 2 orthopedic surgeon and he knew someone who studied crps for 2 years at Jefferson hospital in Philadelphia. I was very lucky 2 get diagnosed early, but it all went down hill after that. I got a nerve blocker on my leg. It worked great. Unfortunately it jumped quickly 2 my arm about a month after the nerve blocker. I didn't get that lucky that time….it got really bad and nothing worked. So I got a spinal implant. Sounds scary, but saved my hand!!! They put 2 leads in in case it jumped 2 my other arm…which it did. I use an ipod to control my pain day 2 day. Weather plays a big part of good and bad days, and so is stress. So try and find something just for u 2 do on those rough days….. really! I'm a 45 year young woman and I'm coloring to calm me down and I listen to music and tune out the pain. Would like to talk more I'm rsnowflake!

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I have Chiari malformation and the nerve pain is hell! I can't sleep from the pain,and really need help blocking it out! How do you do that??

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