cramping with no ovaries, cervix, or uterus?

Posted by Strong Enough 2011 @strongenough2011, Jun 27, 2012

I have had a hysterectomy almost 3 years ago due to constant female problems…..mainly my ovaries having cysts and rupturing.

Within the last month, my stomach has constantly been bloated everyday, and I am cramping alot. ( I know that this feels exactly like it would if I had my ovaries and a cyst on it)…I am nausous often.

Went to my family dr 2 weeks ago and he did some blood work and checked my kidneys….kidneys were fine…blood work showed a wbc of 3.5 and a platlet count of 128, not to mention my absolute neutrophil count as 1474. All of it is on the low side.

Could this be female related? I have always heard that ovarin cancer can cause swelling of the stomach….but i don’t have any ovaries….

any suggestions please?

thanks
Strong Enough

So my mother some time ago (possibly months or about a year I'd say) got her ovaries removed.
She has been experiencing lower abdomen pain, much similar to cramps.
She is an older lady who is going through menopause, she gets a hormone pellet that releases mainly testosterone.
She had PCOS, but thats somewhat irrelevant to the lack of ovaries.
She currently takes progesterone.
The pain occurred sometime this week (Roughly more than 4 days ago).
She isn't experiencing nausea.
We're not sure whats going on and she has consulted her OBGYN.
If anyone has experinced this or can make some suggestions, it'd be greatly appreciated.

@miyaedwards

So my mother some time ago (possibly months or about a year I'd say) got her ovaries removed.
She has been experiencing lower abdomen pain, much similar to cramps.
She is an older lady who is going through menopause, she gets a hormone pellet that releases mainly testosterone.
She had PCOS, but thats somewhat irrelevant to the lack of ovaries.
She currently takes progesterone.
The pain occurred sometime this week (Roughly more than 4 days ago).
She isn't experiencing nausea.
We're not sure whats going on and she has consulted her OBGYN.
If anyone has experinced this or can make some suggestions, it'd be greatly appreciated.

Jump to this post

Hi @miyaedwards, welcome to Connect. You'll notice that I moved your message to this existing discussion "cramping with no ovaries, cervix, or uterus?" where several members (@airey2 @kellidawn79 @lismi51 etc.) are talking about symptoms similar to your mother's: low abdominal pain and cramps. Click VIEW & REPLY to scroll through past messages.

What did the OBGYN think might be the issue?

It seems like years have past since this post first began, yet here I am with similar questions. I hope there are those still following.
I am 51 and I was diagnosed with ovarian cancer 5/2018. A complete hysterectomy was performed (both ovaries, uterus, cervix, fallopian tubes, etc) as well as a biopsy of the pelvis and abdomen. Diagnosis came back as stage 3. I am not doing chemo, just hormone suppressants.
It is now 1/2019 and I started having cramps like I did before the hysterectomy. I am not constipated, bowels are working fine, and I have no issues with my bladder.
Oh, and to add a complication to the matter, I had multiple mini heart attacks 1/1/2019 so I am on all sorts of new drugs.
Any other ideas and which doc should I go see. GYN or Onc? Should I be concerned?

@tlunday

It seems like years have past since this post first began, yet here I am with similar questions. I hope there are those still following.
I am 51 and I was diagnosed with ovarian cancer 5/2018. A complete hysterectomy was performed (both ovaries, uterus, cervix, fallopian tubes, etc) as well as a biopsy of the pelvis and abdomen. Diagnosis came back as stage 3. I am not doing chemo, just hormone suppressants.
It is now 1/2019 and I started having cramps like I did before the hysterectomy. I am not constipated, bowels are working fine, and I have no issues with my bladder.
Oh, and to add a complication to the matter, I had multiple mini heart attacks 1/1/2019 so I am on all sorts of new drugs.
Any other ideas and which doc should I go see. GYN or Onc? Should I be concerned?

Jump to this post

Hi, @tlunday, and welcome to Mayo Clinic Connect. I would be perplexed, too, if I had cramps come back just like before having a hysterectomy. Understandable you are trying to puzzle it out.

If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their experiences.

Hoping that members like @miyaedwards @philstar22 @pattitoo @airey2 @epohyag43 will return and weigh in with their thoughts on the cramping you are experiencing. @darlia @baxtersmom and @travelgirl may also have some thoughts.

I'd also like to suggest, @tlunday, that you might check out our Cancer group https://connect.mayoclinic.org/group/cancer/ and also our Heart & Blood Health group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/ to read about others' experiences and share about some of your own in these health arenas.

You are right that having gone through multiple health issues and taking a variety of medications would add to the complexity of your question about cramping. Do you have a general practitioner you might consult to start with, as it's not clear what specialist to ask?

@tlunday

It seems like years have past since this post first began, yet here I am with similar questions. I hope there are those still following.
I am 51 and I was diagnosed with ovarian cancer 5/2018. A complete hysterectomy was performed (both ovaries, uterus, cervix, fallopian tubes, etc) as well as a biopsy of the pelvis and abdomen. Diagnosis came back as stage 3. I am not doing chemo, just hormone suppressants.
It is now 1/2019 and I started having cramps like I did before the hysterectomy. I am not constipated, bowels are working fine, and I have no issues with my bladder.
Oh, and to add a complication to the matter, I had multiple mini heart attacks 1/1/2019 so I am on all sorts of new drugs.
Any other ideas and which doc should I go see. GYN or Onc? Should I be concerned?

Jump to this post

You are probably right that one or all of your new drugs are interacting. You look online and research those drugs for side effects. Any that match the problems that you are having write down and ask your cardiologist (or whatever type of dr you went to for your mini heart attacks). It could also be the hormone suppressants, and they could be interacting with your heart medicine. The hormones suppressants could also be causing your mini heart attacks since hormones tend to cause a host of problems.

I have this off/on achy pain in the back of my left thigh. Four years ago I had a total hysterectomy for endometriosis, and I do have celiac disease. I did not know if it was related to any one of those or not. I have had sciatica but that was 2 years ago, and that is well now. It seems most noticeable at work, which is a semi-sedentary job (I do deliver important paperwork, but not everyday). My chair at home does not seem to aggravate it. Was wondering what it was.

@airey2

As I said awhile back, I have had off/on vaginal bleeding, some cramping since the total hysterectomy for endometriosis. The bleeding always lasts 1 day at most, usually just a few hours. So by the time i arrive at the dr, the bleeding has stopped. My primary care dr. finally told me to come in without an appt. So last week, it happened again (after 2 months of nothing). This time the dr could see that it was coming from the scar where the hysterectomy was closed up (vaginal cuff area0. There was a little of breakthrough endometriosis and will need to be cauterized/removed.

I've been told by several drs, plus I've read that endometriosis goes away after menopause, but after 4 yrs of surgical menopause, it doesn't seem like it is going away. Is this true, that endometriosis goes away after menopause? Also do you know how the breakthrough will be cauterized/removed? Will they cut me open? Will it require a local or general anesthesia or no anesthesia?

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Hi, @airey2 – glad you have gotten some answers on the vaginal bleeding and some cramping since your total hysterectomy for endometriosis. You mentioned you would be having a procedure to cauterize/remove some breakthrough endometriosis around your scar. Have you now had this done? If so, how did it go?

@miyaedwards

So my mother some time ago (possibly months or about a year I'd say) got her ovaries removed.
She has been experiencing lower abdomen pain, much similar to cramps.
She is an older lady who is going through menopause, she gets a hormone pellet that releases mainly testosterone.
She had PCOS, but thats somewhat irrelevant to the lack of ovaries.
She currently takes progesterone.
The pain occurred sometime this week (Roughly more than 4 days ago).
She isn't experiencing nausea.
We're not sure whats going on and she has consulted her OBGYN.
If anyone has experinced this or can make some suggestions, it'd be greatly appreciated.

Jump to this post

I came here looking for answers about the same thing. I have no uterus nor ovaries now but I did keep my cervix. I had continued monthly bleeding after the hysterectomy so my doctor did a second surgery to remove my ovaries and some wayward endometrial tissue. I thought that the ovaries would take any monthly cycle with them. But every month I bloat, cramp, crave chocolate, and then after a couple days it passes but the bloating goes down more slowly these days unless I take a “water pill”. I’m fine the rest of the time but this still keeps happening in a cyclical pattern. Do our other glands signal the stupid endometriosis to keep kicking our butts once a month?

I have endometriosis also and I found out that endo. is feed by estrogen, and it will even produce its own supply. I was determined to 'starve' the endo. of its food source. Through trial and error, I found that food helps or worsens it. No doctor has ever told me that diet can affect endometriosis.
I was already gluten free for Celiac Disease and one day was eating gluten free bread with flaxseed. I got very sick and couldn't understand why, since it was gluten free. I researched flax and at least 6 different websites said that flax topped the list of having a lot of natural estrogen (plant source estrogen) that our bodies can use. Those same articles also listed soy and gluten as 2nd and 3rd highest sources, respectively. But other sources of natural estrogen, not as high as flax, soy, or gluten, but enough to bother me was in mustard (the turmeric). I also found out that fresh strawberries bothered me, but strawberry jelly did not. I asked my Primary doctor, and she told me to cook all my fruits and veggies because they will all contain natural estrogen in varying amounts. Cooking them will kill it. Also chocolate, coffee and anything that contains caffine will cause inflammation and make the pain worse. Sugar also is an inflammatory food. So yes, food does matter. While diet may not help everyone, and I won't guarantee that it would help you, it did help me.
Start a journal of everything you do and see if you can find common ground.
Stress also will worsen pain.

@airey2

I have endometriosis also and I found out that endo. is feed by estrogen, and it will even produce its own supply. I was determined to 'starve' the endo. of its food source. Through trial and error, I found that food helps or worsens it. No doctor has ever told me that diet can affect endometriosis.
I was already gluten free for Celiac Disease and one day was eating gluten free bread with flaxseed. I got very sick and couldn't understand why, since it was gluten free. I researched flax and at least 6 different websites said that flax topped the list of having a lot of natural estrogen (plant source estrogen) that our bodies can use. Those same articles also listed soy and gluten as 2nd and 3rd highest sources, respectively. But other sources of natural estrogen, not as high as flax, soy, or gluten, but enough to bother me was in mustard (the turmeric). I also found out that fresh strawberries bothered me, but strawberry jelly did not. I asked my Primary doctor, and she told me to cook all my fruits and veggies because they will all contain natural estrogen in varying amounts. Cooking them will kill it. Also chocolate, coffee and anything that contains caffine will cause inflammation and make the pain worse. Sugar also is an inflammatory food. So yes, food does matter. While diet may not help everyone, and I won't guarantee that it would help you, it did help me.
Start a journal of everything you do and see if you can find common ground.
Stress also will worsen pain.

Jump to this post

@airey2 Thank YOU for what you shared, I did not know about FLAX and ESTROGEN. For sure we all are wired differently. Because of hot flashes I have to result to Premarin, no oral, the cream will bypass the liver. At my age I should not be flashing, EVERYTHING has been removed, was left with one Ovary and eventually it had to go also…Non-synthetic Vitamin E helps most of the time.
Stress is worse than many people think..
You shared some valuable information.

@pattitoo

@airey2 Thank YOU for what you shared, I did not know about FLAX and ESTROGEN. For sure we all are wired differently. Because of hot flashes I have to result to Premarin, no oral, the cream will bypass the liver. At my age I should not be flashing, EVERYTHING has been removed, was left with one Ovary and eventually it had to go also…Non-synthetic Vitamin E helps most of the time.
Stress is worse than many people think..
You shared some valuable information.

Jump to this post

@airey2 I still get hot flashes and found Black Cohash helps it's an herb

@airey2

I have endometriosis also and I found out that endo. is feed by estrogen, and it will even produce its own supply. I was determined to 'starve' the endo. of its food source. Through trial and error, I found that food helps or worsens it. No doctor has ever told me that diet can affect endometriosis.
I was already gluten free for Celiac Disease and one day was eating gluten free bread with flaxseed. I got very sick and couldn't understand why, since it was gluten free. I researched flax and at least 6 different websites said that flax topped the list of having a lot of natural estrogen (plant source estrogen) that our bodies can use. Those same articles also listed soy and gluten as 2nd and 3rd highest sources, respectively. But other sources of natural estrogen, not as high as flax, soy, or gluten, but enough to bother me was in mustard (the turmeric). I also found out that fresh strawberries bothered me, but strawberry jelly did not. I asked my Primary doctor, and she told me to cook all my fruits and veggies because they will all contain natural estrogen in varying amounts. Cooking them will kill it. Also chocolate, coffee and anything that contains caffine will cause inflammation and make the pain worse. Sugar also is an inflammatory food. So yes, food does matter. While diet may not help everyone, and I won't guarantee that it would help you, it did help me.
Start a journal of everything you do and see if you can find common ground.
Stress also will worsen pain.

Jump to this post

This is an interesting post to me…
As one of my providers told me to read the book: How Not to Die
https://www.amazon.com/How-Not-Die-Discover-Scientifically/dp/B016CME5B4
The book seems to disagree with most of what you have mentioned in your post. I know you are speaking from personal perspective.
The conflicts are why .. what to eat gets very confusing for me….
I wish there was a go to site for dietary questions…

@cmd03

This is an interesting post to me…
As one of my providers told me to read the book: How Not to Die
https://www.amazon.com/How-Not-Die-Discover-Scientifically/dp/B016CME5B4
The book seems to disagree with most of what you have mentioned in your post. I know you are speaking from personal perspective.
The conflicts are why .. what to eat gets very confusing for me….
I wish there was a go to site for dietary questions…

Jump to this post

Hi, @cmd03 – wondering what type of dietary questions you may have (e.g., for patients with a certain disease, general health, those who weight train)? We may be able to refer you to an appropriate thread on Connect.

Also wondering, in light of this thread on cramping with no ovaries, cervix, or uterus, if you may have experienced this situation?

Yes, I watch this thread as I have some right flank pain, which is mysterious, and no one has been able to help me with. I was told by one provider it was phantom menstruation pain..
I am a BC survivor and as a result fall into this category as well based on course of treatment I have had. Thus the reason I follow this board.

I believe your microbiome and what you eat is so relevant, and individualized. I agree with @airey2 that journaling is such a good idea.
I do believe there is a misconception regarding flaxseed and think dietary choices can be very confusing for cancer survivors.
Here is a good article on flax:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5808339/
Sloan Kettering has good information on herbs:
https://www.mskcc.org/cancer-care/patient-education/herbal-remedies-and-treatment

Really looking for an individualized dietary resource.. thoughts?

I'm 66 and had a total hysterectomy three years ago for uterine cancer (stage 1) and all was fine until I experienced pain in my abdomen a year ago. Turns out I had a port site metastasis from the laproscopic surgery for the cancer. (Yes, in treating me for cancer, they dropped a few cancer cells on the way out.) No worries – it was fixable with more surgery to remove the small tumor from my abdomen wall followed by plastic surgery to rebuild the abdomen wall. Btw, I was not really considered a candidate for any of these things. No cancer history, no problems with my period, I'm at ideal weight and exercise and eat well. But I have not had children and was taking bio-identical hormones for years so perhaps those factors contributed.

Now, a year later, I'm suddenly having mild chronic pelvic pain like menstral cramps and bloating…also I'm a little moody. Exercise and moving a lot helps. Is this the result of these two surgeries? Should I be concerned or is this "normal" after so much disruption to my midsection?

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