Covid treatment- any recent experience?
I’m currently hospitalized with my first ever case of Covid- my fever was high and persistent, I cope with nausea, etc. I’m here to receive infusions of Remdesivir, as a substitute for paxlovid and I think I’ll be here for 3 days. Has anyone experienced something like this recently? It’s nerve wracking and also I’m finding it to be triggering to be hospitalized after all of the previous chaos of illness.
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@donnabl, I want to invite you to this support group. I've no covid experience, however, since you are pretransplant - active in the liver cancer group and currently diagnosed with covid - perhaps members @katebw, @skjones, @chickytina, @roxanne12345, who are transplant recipients will be able to offer their suggestions.
Donnabl, how are you feeling today? Any relief yet?
I had commented to @donnabl a few days ago. However, this is pretty much what I said:
I had caught COVID when on vacation. On January 1st, I woke up with a sore throat. I thought it was from the fireworks the night before. Even though I wore two masks, I was still able to smell the smoke. I had a fever, so I called my transplant team. They had me take extra steroids and Tylenol, because I was unable to get a COVID test at the time and I was coming home the next day. When I took a COVID test on January 3rd it was positive and I was put on remdesivir for 3 days via a pill. I no longer had fever, but still wasn't doing much better. I went into the hospital in February with the beginnings of rejection and received intravenous meds to reverse that. So I think that @donnabl might be better off that she was put in the hospital right away.
Unfortunately for me that wasn't the end of the story. I contracted Eboli a few weeks later and was back in the ER for IV, but didn't need to spend more than 12 hours there (I tried to go to a local ER rather than the transplant hospital, so they had to run all their own tests).
I went to er but the just sent me home told them I have cancer but they just said get rest drink plenty of water and stay away from people so I go home we all tested positive for covid me my 2 daughter and her boyfriend and my other daughter tested negative and she sleeps with me but that was I started feeling sick on Sunday of last week stayed in bed and I felt chills and head felt like it was going to bust open so I had a few covid test put away so we all took and mind u we were all positive then I went in to the hospital on Friday and then took a test it was positive and I was feeling a little bit better but not much so I thought ok been a few days so I test again and I'm still positive but the red line is really faint so I'm going to test again today I have a fundraiser to do tomorrow for my trip to Minnesota raise money for gas and lodging ill be there for like 5 days ya well I'm feeling better today so I hope for the best and you have a blessed day and prayers for all that cancer people 🙏🙏🙌
I'm glad to hear that you are feeling better. My transplant team notified the ER that I was coming in so that they were ready for me and gave me special attention. I also reminded most of the people working on me that I was a transplant recipient. I was actually moved 7 times in the ER (one time I was where the portable Xray machine was kept).
Please make sure that you mask up so that you protect others.