Corticobasal Degeneration

Posted by iona824 @iona824, Jan 31, 2022

My very close friend has just been diagnosed with this disease I have two questions if she came to Mayo clinic either in Minnesota or Florida would you be able to help her with the proper medication to build up her cognitive abilities. What drug do you see as the most help for this disease from a cognitive point of view.

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Hello @iona824 and welcome to Mayo Clinic Connect. How wonderful of you to be reaching out on behalf of your friend to learn more and help her. This community is made up of members like you who support one another.

Let me start by clarifying if you meant to ask about Corticobasal Degeneration?

- Corticobasal degeneration:
https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/symptoms-causes/syc-20354767

Can you confirm?

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@amandajro

Hello @iona824 and welcome to Mayo Clinic Connect. How wonderful of you to be reaching out on behalf of your friend to learn more and help her. This community is made up of members like you who support one another.

Let me start by clarifying if you meant to ask about Corticobasal Degeneration?

- Corticobasal degeneration:
https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/symptoms-causes/syc-20354767

Can you confirm?

Jump to this post

Yes

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In reply to @iona824 "Yes" + (show)
@iona824

Thank you for confirming. You will notice that I've updated the title of your post to allow for more people to find this discussion.

According to the National Organization for Rare Disorders: “There is no specific treatment that slows down the progression of corticobasal degeneration. Treatment is directed toward the specific symptoms that are apparent in each individual, although most cases prove resistant to such therapy.” You can read more on their website here: https://rarediseases.org/rare-diseases/corticobasal-degeneration/

You may also be interested in reading about treatment at Mayo Clinic:
- Corticobasal Degeneration: Diagnosis and Treatment:
https://www.mayoclinic.org/diseases-conditions/corticobasal-degeneration/diagnosis-treatment/drc-20475446

For a bit more background on your friend, can you share when she was diagnosed and what, if any, care has been recommended so far?

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Her daughter and brother what I consider a very stupid selfish act. They decided to take her car keys away from her she has no tremors a little speech problem and that’s it I’m furious about it I’m not the family what can I do about it if anything

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