Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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tmmmrlts | @tmmmrlts | Jan 12, 2019

In reply to @merpreb "@tmmmrlts- Oh no, has he taken a turn for the worst? How can I help you?" + (show)

@merpreb thank you but unless my husband changes his mind there is nothing anyone can do

Merry, Alumni Mentor | @merpreb | Jan 12, 2019

In reply to @tmmmrlts "He has had copd since 2011, and dont know how long he has had pulmonary fibrosis,..." + (show)

@tmmmrlts- Have you told the infectious disease doctor? I don't understand that dr. either. Shame on him for blowing you off like that.

tmmmrlts | @tmmmrlts | Jan 12, 2019

@@merpreb haven't got hold of him yet he won't be back in office from holiday until monday

Merry, Alumni Mentor | @merpreb | Jan 12, 2019

In reply to @tmmmrlts "@merpreb thank you but unless my husband changes his mind there is nothing anyone can do" + (show)

@tmmmrlts- I've tried to find on your conversations here if you mentioned why he didn't want to do anything different.

tmmmrlts | @tmmmrlts | Jan 12, 2019

In reply to @tmmmrlts "@@merpreb haven't got hold of him yet he won't be back in office from holiday until..." + (show)

I have been trying to get my husband to go to er or urgent care and he hasn't yet. I'm just trying to get through this. But it is hard with him. He is hurting in his chest on his left side and he gets out of breath to easy. He goes outside and he gets sick from the cold I don't know what makes that happen. He also throws up most of the time when he eats. I'm at a loss for what to do.

Merry, Alumni Mentor | @merpreb | Jan 12, 2019

In reply to @tmmmrlts "I have been trying to get my husband to go to er or urgent care and..." + (show)

@tmmmrlts- When do you next see your infectious disease guy? You know that you can call the ER or urgent care and tell them his symptoms saying that he is getting worse and needs an ambulance...

tmmmrlts | @tmmmrlts | Jan 12, 2019

In reply to @merpreb "@tmmmrlts- I've tried to find on your conversations here if you mentioned why he didn't want..." + (show)

He is tired of hurting and being sick all the time. He has back and neck problems and a pinched nerve in his back and the neurologist and back dr said he wasn't a good candidate for back surgery this was back in 2011 and now they won't because of his lungs. I think it also has to do with losing our daughter, back in 08 he really hasn't been the same. He is scared to eat sometimes because he throws it up. He has told me the only reason he is living is for his 4 children and 7 grandchildren and not for me.