Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

@tmmmrlts

@@merpreb haven't got hold of him yet he won't be back in office from holiday until monday

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I have been trying to get my husband to go to er or urgent care and he hasn't yet. I'm just trying to get through this. But it is hard with him. He is hurting in his chest on his left side and he gets out of breath to easy. He goes outside and he gets sick from the cold I don't know what makes that happen. He also throws up most of the time when he eats. I'm at a loss for what to do.

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@tmmmrlts

I have been trying to get my husband to go to er or urgent care and he hasn't yet. I'm just trying to get through this. But it is hard with him. He is hurting in his chest on his left side and he gets out of breath to easy. He goes outside and he gets sick from the cold I don't know what makes that happen. He also throws up most of the time when he eats. I'm at a loss for what to do.

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@tmmmrlts– When do you next see your infectious disease guy? You know that you can call the ER or urgent care and tell them his symptoms saying that he is getting worse and needs an ambulance…

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@merpreb

@tmmmrlts– I've tried to find on your conversations here if you mentioned why he didn't want to do anything different.

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He is tired of hurting and being sick all the time. He has back and neck problems and a pinched nerve in his back and the neurologist and back dr said he wasn't a good candidate for back surgery this was back in 2011 and now they won't because of his lungs. I think it also has to do with losing our daughter, back in 08 he really hasn't been the same. He is scared to eat sometimes because he throws it up. He has told me the only reason he is living is for his 4 children and 7 grandchildren and not for me.

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@merpreb

@tmmmrlts– When do you next see your infectious disease guy? You know that you can call the ER or urgent care and tell them his symptoms saying that he is getting worse and needs an ambulance…

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@merpreb as long as he refuses they cant take him and he would refuse and be angry with me

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@tmmmrlts

He is tired of hurting and being sick all the time. He has back and neck problems and a pinched nerve in his back and the neurologist and back dr said he wasn't a good candidate for back surgery this was back in 2011 and now they won't because of his lungs. I think it also has to do with losing our daughter, back in 08 he really hasn't been the same. He is scared to eat sometimes because he throws it up. He has told me the only reason he is living is for his 4 children and 7 grandchildren and not for me.

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@tmmmrlts– Oh my. I'm tongue tied. Can you go to counseling?

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@tmmmrlts

@merpreb as long as he refuses they cant take him and he would refuse and be angry with me

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@merpreb I have to call Monday and talk to his infectious disease dr

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@merpreb

@tmmmrlts– Oh my. I'm tongue tied. Can you go to counseling?

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I have tried to get him to and he refuses

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@tmmmrlts

I have been trying to get my husband to go to er or urgent care and he hasn't yet. I'm just trying to get through this. But it is hard with him. He is hurting in his chest on his left side and he gets out of breath to easy. He goes outside and he gets sick from the cold I don't know what makes that happen. He also throws up most of the time when he eats. I'm at a loss for what to do.

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Does your husband wear a "surgical" mask when going out into the cold air? It helps me tremendously. Also does the doc have him on medicine for acid reflux? That was one of the first meds that the lung doc put me on. He said that the acid reflux can "splash" over and injure the lungs. Blessings to you.

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@baz10

Does your husband wear a "surgical" mask when going out into the cold air? It helps me tremendously. Also does the doc have him on medicine for acid reflux? That was one of the first meds that the lung doc put me on. He said that the acid reflux can "splash" over and injure the lungs. Blessings to you.

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@baz10– Even a ski mask!

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@tmmmrlts

He is tired of hurting and being sick all the time. He has back and neck problems and a pinched nerve in his back and the neurologist and back dr said he wasn't a good candidate for back surgery this was back in 2011 and now they won't because of his lungs. I think it also has to do with losing our daughter, back in 08 he really hasn't been the same. He is scared to eat sometimes because he throws it up. He has told me the only reason he is living is for his 4 children and 7 grandchildren and not for me.

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Sounds like depression has a great deal to do with your husbands feeling so unworthy of living. I facilitated a depression support group for over 6 years and the people who attended were so grateful for someplace to vent that didn't cost anything. Also an exercise program on PBS each morning called Functional Fitness is a great place for your husband to get a bit of exercise (you too). There are normally 3 people doing different levels of exercise and occasionally there is an exercise for those of us who have COPD and it has helped me tremendously. If he can only do 2 minutes to start with, that is an accomplishment! Since he is not normally one to sit and do nothing, this might be something that he will consider doing. Blessings~~

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@baz10

Does your husband wear a "surgical" mask when going out into the cold air? It helps me tremendously. Also does the doc have him on medicine for acid reflux? That was one of the first meds that the lung doc put me on. He said that the acid reflux can "splash" over and injure the lungs. Blessings to you.

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@baz10 yes he has tried wearing a mask and yes he is on omeprazole for acid reflux

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Today makes 30 hours without cigarettes. For both of us. Hopefully we can keep it up.

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