Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

@baz10

Please make sure your husband eats something before taking the antibiotic, ( if it won't hurt) and if he is taking other meds, could they be interacting with each other? I was taking Dexilant 60 mg daily and after awhile they were causing me some problems, so the doc said that perhaps he was "over" medicating me, so we went to Prevacid over the counter. If you are in Indiana, the Allergy/Asthma doc that I go to, is very good in Fort Wayne. It is depressing to get the word that one has lung issues, but I was in my early 30's when told that I had a heart syndrome. Thought that my world would come crashing down, but that was 40 years ago, and the diagnosis hasn't kept me from doing anything. Same when told about the lung issues. Take heart in knowing that a Higher Power has us in His care. Blessings to you and your husband.

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In reply to @tmmmrlts "@baz10" + (show)

Sorry I'm new to all this messaging. baz10 he does eat something, but it doesn't make any difference. Yes some of his medicine interact with the others I am going to talk to his dr about it. I know the pain meds do

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They did a bunch of blood test and they called and said that 3 of them were normal, and she said the dr had the rest on his desk. What do they do expect us to just wonder what they mean his next appt. Isn't until Feb 26,

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@tmmmrlts– I would suggest calling them back and telling them that your last conversation left you very anxious. Maybe "Would they please let me know the results of all the tests?" I hate this type of call and it's mean.

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I'm going to call back Monday. I know my husband is dying. I just dont like it when they just leave you hanging. Especially when I have seen the results and just dont understand them.

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@tmmmrlts– Oh no, has he taken a turn for the worst? How can I help you?

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He has had copd since 2011, and dont know how long he has had pulmonary fibrosis, or the honey comb lung and it's been almost a year since he was diagnosed with mac bacterial infection.
I know my husband and he is not one to just sit around and do nothing. But he has been running fever in the afternoon and throwing up every day. No matter what he eats. He has lost 20 lbs in about a month. He lays down more than he ever has. I brung this up to his dr in dec and he said I will let the infectious disease dr handle it. We have used this doctor for 30+years and I dont understand him anymore.

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@merpreb

@tmmmrlts– Oh no, has he taken a turn for the worst? How can I help you?

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I Also know God in control and if he wants him here he will be, all I know is I'm praying

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@merpreb

@tmmmrlts– Oh no, has he taken a turn for the worst? How can I help you?

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@merpreb thank you but unless my husband changes his mind there is nothing anyone can do

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@tmmmrlts

He has had copd since 2011, and dont know how long he has had pulmonary fibrosis, or the honey comb lung and it's been almost a year since he was diagnosed with mac bacterial infection.
I know my husband and he is not one to just sit around and do nothing. But he has been running fever in the afternoon and throwing up every day. No matter what he eats. He has lost 20 lbs in about a month. He lays down more than he ever has. I brung this up to his dr in dec and he said I will let the infectious disease dr handle it. We have used this doctor for 30+years and I dont understand him anymore.

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@tmmmrlts– Have you told the infectious disease doctor? I don't understand that dr. either. Shame on him for blowing you off like that.

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@@merpreb haven't got hold of him yet he won't be back in office from holiday until monday

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@tmmmrlts

@merpreb thank you but unless my husband changes his mind there is nothing anyone can do

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@tmmmrlts– I've tried to find on your conversations here if you mentioned why he didn't want to do anything different.

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