COPD Group: Introduce yourself and connect with others

Welcome to the COPD group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with COPD, emphysema and chronic bronchitis or caring for someone with COPD. Let’s learn from each other and share stories about living with COPD, coping with the challenges, and exchange tips.
Feel free to browse the topics or start a new one.

Pull up a chair. Let’s start with introductions.

What's your COPD story? What helps you?

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

Hello all, I’m new to this so here I go, I have COPD, Asthma, and Emphysema so I’m trying to learn how to live with it and also how to control this cough. I’ve had for nearly a year now and I can’t keep taking prednisone so any ideas would be greatly appreciated.

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What are exercises for copd?

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Do you feel Annoro elipta is the best inhaler?

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I had a blood clot go thru my lungs and heart on Dec. 26,2019 !
I had a very high fever and my body was shutting down when I arrived at E R !
they got me stable but I have AFIB and they say that I have COPD !
I was in the hospital for 4 weeks and I was getting bored one night, so I walked to the nurses station and i almost didn't make it back to room because I couldn't breathe !
That's when the left side of my diaphragm became paralyzed !
I had surgery to get the left side off my left lung and they stitched across it so it wouldn't move !I still have a lot of trouble breathing and wondering if anyone has been thru what I've been thru ?

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@mpeters

There is a world of difference between seeing my pulmonary PA at home and my Mayo Clinic NP. My Mayo provider gives me ten times the amount of time and I feel I get world class service.

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I have an appointment with the Mayo Clinic in Phoenix, AZ on June the 2nd with the Pulmanary Vascular departments ! My breathing is getting worse every day and I'm trying to get an appointment sooner than June ! Everything I try to do, I loose my breath !
I'm on oxygen at home and it helps !

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I was diagnosed with mild COPD a few years ago. The doctor said 'Here's a Rx for an inhaler. Use it when you need to." That's it. When I asked what caused it, 'Well you used to smoke so most likely that's why'. I feel like there should be more. After dealing with this for this time with little to no assistance to teach me about it, I'm going to request to see a pulmonologist cause I wonder if there are treatments for this. I understand it isn't curable.
This past Sunday I had my wife take me to the ER with a really bad chest cold that was causing me to cough so hard I'd pass out. My wife said my eyes would roll up and my face turn almost purple. My feet shake and hands move without purpose. As awareness comes back I'm very confused about what is happening, where I am. Everything visually is all stars. After a few seconds I regain enough to understand what happened.
This also happened last winter while vacationing in Texas for a month. Then the diagnosis was pneumonia. This year they said the ct-scan did not show pneumonia but the Dr was surprised as he thought it would after listening to me breath.
Are these normal reactions to COPD? Sometimes just bending over to tie my shoes leaves me panting ridiculously. They do EKG's on my heart and it shows all is fine. Stress tests, the same. My O2 levels always show 94-96. I'm excited to have found this website and hope to begin learning things about COPD, what can be done to help or maybe when I should be looking for more answers. Thank you for listening .

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