COPD Group: Introduce yourself and connect with others

Welcome to the COPD group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with COPD, emphysema and chronic bronchitis or caring for someone with COPD. Let’s learn from each other and share stories about living with COPD, coping with the challenges, and exchange tips.
Feel free to browse the topics or start a new one.

Pull up a chair. Let’s start with introductions.

What's your COPD story? What helps you?

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

Do you know anything about the treatment of COPD with stem cells. Any clinical trials.

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HI Everyone . I get so lost here and trail off reading all of the helpful post . I am having good days and learning how to cope best as possible .I am learning that spring summer weather are much better on my COPD than fall winter . Just wanted to say thanks to all of you for sharing your own living with COPD . I am learning so much . Again Thank you

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@anthony1956

Yes,
I've always been in great shape. My hip was so bad that if I walked just 1/2 mile, it would start hurting. I just had hip surgery and will start walking next week. I was going to do bariatric surgery but with chronic bronchitis it's not recommended. Anyways, I'm sure I can lose the weight. I will start swimming too I have to start slowly because I've noticed that when I excerpt myself, I get out of breath, so, I have to build up to it.

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Ah, ha! The mystery becomes apparent to your gaining weight! I think that my sister is the only person who lost weight when she couldn't move much. I might be having some knee surgery so I'll have to keep this in mind.

I'm also sure that you can lose the weight when you start to move more! I wish you the best.

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@anthony1956

Do you know anything about the treatment of COPD with stem cells. Any clinical trials.

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Anthony, the short answer is that stem cell therapy is in the research phase for the treatment of COPD.

Stem cell therapy (regenerative medicine) has the potential to provide innovative new therapies for people with lung diseases, including chronic obstructive pulmonary disease (COPD). This therapy is currently under study. You can read more about the research being done at Mayo Clinic here: http://mayocl.in/2ieWfYH
End stage COPD is treated today with medications or lung transplants.

Beware of websites that offer stem cell therapy as a cure. There are scams out there.

You may be interested in this related discussion in the COPD group.
- Is stem cell treatment an option for COPD? https://connect.mayoclinic.org/discussion/cop-and-stem-cell-treatment/

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@gregoryz

HI Everyone . I get so lost here and trail off reading all of the helpful post . I am having good days and learning how to cope best as possible .I am learning that spring summer weather are much better on my COPD than fall winter . Just wanted to say thanks to all of you for sharing your own living with COPD . I am learning so much . Again Thank you

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Stay with us, Gregory!

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@merpreb

Stay with us, Gregory!

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Ha ha yes Staying around for awhile . I hope everyone is taking care !

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@gregoryz

Ha ha yes Staying around for awhile . I hope everyone is taking care !

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Ha, ha- I'm glad but I really meant Connect. Your story and how you can help others are so important to those seeking information and support as you have! There's nothing better in the whole world!

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@writerbroad

Hi, John. I questioned an asthma diagnosis years ago (no testing done) and decided that I had really been having anxiety attacks, as it only happened when showering in my too cold bathroom. My most recent visit to a pulmonologist resulted in a new round of pulmonary function tests and a diagnosis of severe COPD and mild asthma. Asthma! So I went looking on the internet for how asthmas is diagnosed. The following is an old article, but it is so clear and so detailed in how the testing is done (consistent with my recent tests) that it answered all my questions. From this article, I would guess that asthma is caused by many different things, since it is inflammation of airways -- more a symptom than an independent disease. At least that's my nonmedical understanding of it.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2774375/

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Hello again,
Just recently visited an ENT. I filled him in on all previous tests and the diagnosis of asthma. He asked a few questions about medical history and scoped my nasal passage. His conclusion was that I had a neurogenic cough. Basically,
Irritated nerves from covid. He prescribed a small dose of Amitriptyline. This actually stopped the cough. My questions now are, is this a long term treatment and will it cure the cough? Do I still have some level of asthma? Do I still need the inhalers?

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@john2871

Hello again,
Just recently visited an ENT. I filled him in on all previous tests and the diagnosis of asthma. He asked a few questions about medical history and scoped my nasal passage. His conclusion was that I had a neurogenic cough. Basically,
Irritated nerves from covid. He prescribed a small dose of Amitriptyline. This actually stopped the cough. My questions now are, is this a long term treatment and will it cure the cough? Do I still have some level of asthma? Do I still need the inhalers?

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If you get any answers, be sure and post. If you discontinue inhalers, I'm sure your doctor will have you withdraw gradually, since stopping any sort of steroid treatment can be dangerous. I want to do that, but my present doctor just prescribes drugs then schedules a follow up in 6 months. Guess I'll just keep trying to find a doctor who listens.

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There is a world of difference between seeing my pulmonary PA at home and my Mayo Clinic NP. My Mayo provider gives me ten times the amount of time and I feel I get world class service.

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