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Cryptogenic Organizing Pneumonia (COP): Any success in treating?

Posted by spudmato @spudmato, Jul 26, 2019

Has anyone out there had success with treating COP (cryptogenic organized pneumonia)?

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plantz | @plantz | 1 day ago
In reply to @spudmato "I have been under treatment for over a year. The base of my treatment has been..." + (show)
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I have been under treatment for over a year.
The base of my treatment has been prednisone 5 to 60 mgs.
Most recently the dosage has risen from 20 mg to 30 mg. In the past, a reduction has calmed the COP. The last change from 5 mg to 20mg saw a significant flair in the IN ONE LUNG.
My immune system is suppressed from several years of prednisolone, and I have picked up bacteria of opportunity. Micro bacterium. Cholea, etc. A new unknown bacterium is currently being cultured.
I have had some severe negative reaction to one of the anti biotics.
Not much fun at this time.

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@spudmato I was in hospital for 20 days with tests etc and finally said organized pneumonia. I came in with 65 oxygen level!! Now I’m being told it might come back when my dosage of prednisone goes dow in about month or so and I also have multiple myeloma which is a cancer I had a stem cell transplant and was on Revlimid and have a lousy immune system. I was told that these things MIGHT. have contributed to this??

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