Considering Forteo
Hello everyone,
My doctor would like me to start Forteo. I am 62 and have what is considered severe osteoporosis. It has been stable for many years and I have been treating it holistically (fit and exercise) and with Evista. Due to my age and underlying Panhypopituitarism (needing steroids for most my life) , my doctor is very concerned about my bones.
Has anybody used Forteo and how has that been? I am concerned about side effects and he mentioned that the black box warning of osteocarcinoma has been removed, but I still worry about that as well. It’s one of those things that I need to consider the benefits versus the negative side effects.
Thank you all so much for any information you may have.
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@lisitabelle and @luckypup
you can order on amazon without script https://www.amazon.com/s
probably lower cost with insurance
I use these with Forteo BD Ultra-fine 32G (a little finer than the 31 G) 4mm shorter than the 5 to 8 recommended for Tymlos
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1 Reaction@gently Wow! Thank you for that! Very useful info 🙂
Thank you for the tips! Going by a Dollar store today 🙂
FWIW, I had first in JanuDXA scan in 2014 at age 57. I didn't find out the results until 2016. I was told I had the bones of a 70 year old woman at age 57. Fosomax from 2016 to 2019 until it caused bad gut issues, so I stopped. I'm still left with gut issues from that. I read in a white paper that Fosomax stays in the body continuing to work for 10 years after you stop. That it also pulls from the femurs to fee the hips and pelvic region. That was years ago and I cannot locate that same white paper. Judging form the surgeon's comments and sort of odd behavior I feel that white paper was right.
I broke my femur in January. It snapped like a dry branch even after years of exercise, good diet, all the right supplements. The femur broke in midfall, not when I hit the ground. So finally got apporved for Forteo after a 2 month struggle with insurance. Began treatment 2 April. That first injection , after 5 to 10 mintues , severe bone pain in lower lumbar and pelvic region of my back. It lasted for about 20 minutes in intensity then began to subside. My husband panicked and called 911. By the time the ambulance got there, it was already simmering down. I was left with a headache and nausea I managed with meds. My doctor said stop so I did. A week later, after giving it thought, I knew there was nothing else I could take so I decided to tough out the pain until my body adjusted. I was fully expecting the same reaction. 7 days between 1st and 2nd injection. My doctor gave me the green light. So far, so good, no really bad anything. Minor headaches and/or nausea and other days nothing. Some fatigue. I don't have a choice, this is the only medicine that seems promising. According to the PA for a followup after my surgery, she said I fell in the rare 5 to 10 % of people who have that sort of reaction.
Prolia and Reclast are off the table due to how bad my osteoporosis is. I can't risk my other femur breaking. I've given birth twice with no meds and would rather go through 10 more no meds births than break a femur. It was the worst pain ever. Everyone is different, so take my experience for what it's worth. I'm glad I decided to push through with the Teriparatide/Forteo.
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5 Reactions@inlimbo I'm just starting Forteo tomorrow night. Your info is really helpful. I will have some Tylenol ready to go 🙂 Your experience also seems to match a bit of what I've heard from others that the symptoms may not last long and not repeat after awhile. I hope you have good success from its effectiveness and prevent any future fractures! Thank you for sharing!
I wanted to give an update about my journey so far with Forteo. I completed one week and feel fine. I had some light headedness in the mornings but other than that, all is well. @luckypup , I hope you’re doing well too!
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4 Reactions@lisitabelle That is great news! I have been doing well also. I took it slightly earlier last night and later had an odd chest pain...more like esophageal discomfort that started to freak me out...HA! I was trying to figure out what was going on and thought maybe it was just a weird side effect to Forteo like nausea would be and that calmed my nerves a bit. I figured it would pass.
Not sure what that was about. I hadn't eaten anything odd. I drank some water and tried to go to sleep. It passed.
I do have some localized reactions immediately after the shots. Some redness and itching that also doesn't last. Odd adventure that I hope works well 🙂
Hoping for success for both of us!
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1 Reaction@luckypup oh that had to be scary! I think that with any new med our bodies are adjusting. I’m sorry that happened to you and I hope it was a one time experience. Keep in touch and be well. ☺️💕
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2 Reactions@lisitabelle It made me grateful for this little community chat where I can learn from others experience!
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2 Reactions@luckypup
How are you feeling on Forteo? So scared postponing it am at risk for MRONJ. What will you do after? Why Forteo and not Tymlos? Hope all is well
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