my grandson who has cp has had three muscle tremors, talked to neuroligist today and she said likely seizure, lasts 20 sec with no aftereffects, he just has arm that shakes for about 20 sec, wouldnt testing eeg, etc be a better way to get diagnosis
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Hi @lindagirl and welcome to Connect. That must be so frightening to see your grandson have these tremors.
As we wait for others to respond, I would love to know more about your grandson's situation. By CP do you mean Cerebral Palsy? When he has these muscle tremors is he aware of what is going on?
I’m sorry to learn of your grandsons potential seizure activity. @ethanmcconkey asked if CP stood for Cerebral Palsy. I was wondering this as well. Although after I saw ”seizure” I thought you probably meant Complex Partial.” The current terminology for Simple Partials is Focal Aware Seizures and Complex Partials are known as Focal Impaired Seizures. Even though the neurologist said the episodes were probably seizures approximately 25 to 35% of people with Cerebral Palsy have epilepsy. Would you mind clearing up exactly what you meant by CP ? Would you mind sharing your grandsons age? How frequently do these episodes occur? Did the neurologist mention starting seizure medication or doing an EEG, MRI or blood work. Does your grandson have any other medical problems? I am assuming the Neurologist suggested they may be Focal impaired/Complex Partials versus Focal aware/Simple Partials because your Grand son is unaware that his arm is moving. Is he aware of the movement? Afterwards does your Grandson ever sleep, feel tired or confused?
My grandson is 5. He does have celerbral palsy on right side.. Moving around very good, good memory, talking more and more when this arm spasms he is completely aware. He laughs and goes whoh! He has had 3. in three months. Just dont understand how this can be diagnosed with eeg or other tests He is scheduled for an eeg April 1. My daughter set this up before dr visit. They last about 20 seconds, and he goes on playing as usual. No loss of conscience, violet jerking, just a mild spasm in arm.
@lindagirl It must be very hard for you, having a grandson with cerebral palsy, but he sounds delightful. He doesn’t let the spasms bother him at all! What type of CP was he diagnosed with (some types have muscle tremors.)?
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Hi @lindagirl you may have noticed I moved your post to the Brain & Nervous System group (https://connect.mayoclinic.org/group/brain-and-nerve-diseases/) so that you can connect with others who have similar experiences.
That is wonderful that he is improving in those areas and that he has such a good attitude during the spasm.
To repeat @becsbuddy's question, what type of CP was your grandson diagnosed with?
It is Cerebral Palsy as a result from birth, He is 41/2 and has 3 tremors last 20 seconds, he laughs and goes about his busines. Not tired or lethergic after. He had one in dec, jan, feb. Then he goes back to playing. He is have eeg. No mention of meds yet.
A few other Connect members who've mentioned cerebral palsy may have some input on these arm spasms your young grandson is experiencing. Please meet @mypenmystory @bobsgift @minniepearl2 @bootboyrick @emgold2013 @angip83.
Has his mom inquired about whether they could move up his EEG to a little sooner date?
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