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Complications with Peripheral Neuropathy
I was diagnosed with PN in 2018 with symptoms of tingling and pain in my feet. First Medication was gabapentin, (caused dizziness and falling) along with baclofen. Now on Lyrica, Baclofen (3X's day) ,
Cymbalta at night for cramps, Lidocaine/Prilocaine cream on both feet, especially top and bottom of toes. The neuropathy is now in both feet, in calf muscles in both legs, Additional symptoms are pain, stabbing, shock like pain, balance issues (using cane) severe burning in both feet, both legs have redness where nerves are irreparably damaged. Pain is so bad at times I cannot walk without pain and it prevents me from walking and participating in many areas I loved to do in the past. Many alternative treatments, hard to know if any really work. thank you.
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@gba Hello,
I am starting Scrambler Therapy in a couple of weeks. I was told that I should notice if it is working with in 3 - 4 sessions. I know everyone is different. With that said is there an average ? It’s a lot of money to put out there. To get some relief I am willing to fork out the $$$$ Any reason why it is that the doctors send you off to see other doctors and specialists. It’s almost like they just don’t want to be bothered with this terrible problems that we all have. If there is nothing they can do for us Just Tell Us Dam-It Sorry I’m just venting!
Thank you for your Time,
Frank
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2 ReactionsHi Frank @goddamit69, Welcome to Connect. Venting is definitely OK. It's difficult to say whether or not a specific treatment will work due to each of us being different and what works for one doesn't always work for others. You might want to scan through the following discussions to learn what others have shared on the Scrambler (Calmare) Therapy:
-- Have any of you heard of Calmare Scrambler Therapy?: https://connect.mayoclinic.org/discussion/scrambler-therapy-for-neuropathy/
-- Hope: Starting Calmare scrambler therapy: https://connect.mayoclinic.org/discussion/hope-1/
-- Has anyone tried Scrambler Therapy for neuropathy or for pain?
https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/
Have you been diagnosed with peripheral neuropathy?
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So sorry to hear about your constant pain. I developed peripheral neuropathy due to trauma I suffered 5 1/2 years ago when I was in a medically induced coma for complications brought on by acute pancreatitis, necrosis and sepsis. My major organs were shutting down and the doctors called my family in and told them that I would not survive. Of the 55 people in the ICU, they said I was the “sickest”.
My family went to the hospital parking lot prayed and let me go.
GOD was not finished with me yet ! After three week in a coma I ended up getting out of ICU and started a journey that required learning to walk, eat, breathe and talk but after 3 months I got out.
Where am I am going with this ? Because of my near death experience, I had to postpone back surgery which I had 14 months later. I had a 12 hour Laminectomy and Spinal Fusion from S-1 to T-10 which has left me in pain and with nerve damage. Most pain that I had ever been through in my life and 3 1/2 years and seeing specialists at multiple healthcare systems including Mayo I am continuing to progressively getting worse. I will soon be unable to walk and even with pain medication I experience only minimal short term respite.
I tell you all this to say NEVER give up hope. Have prayed for you when I read your post and hope that you will find something that helps you in your condition / situation.
Blessings,
A fellow peripheral neuropathy sufferer who knows and understands a bit of what you are going through
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1 Reaction@johnbishop John,
I do not understand why it is but all of these Doctors that I have seen including at Stanford have no diagnosis or reasons why it is that I am in this pain. They say because of my age, occupation, previous surgeries that there are too many things going on and that’s when to refer me back and fourth from pain management companies and same thing with the doctors. Remember this has been going on for 10 years. None of my questions have been answered. Why do doctors do this? I would rather just come right out and say sorry Frank but there is nothing we can do or we just do not know. I’ve had it!
Sorry for your pains but I don't think the drugs you mentioned help much for anyone. Certainly, it's not a cure. I think the medical community is way behind their research on nerve damage and they see $$$$$ with all the quick fixes that don't work. Shame on them.
@goddamit69 I feel your pain literally. Get this!! Over the last 4 years I have had Covid twice and 2 other viruses. Each brought a fever of about 102 at the highest. During the fever days, my peripheral neuropathy symptoms were gone. Each time I had a fever, no neuropathy!!!! The 3rd and 4th time I was ready for the fever and the neuropathy pains leaving. I have mentioned this to several doctors, and they have a puzzled look. Of course, when my fever broke, neuropathy pains returned. You would think doctors would try to determine what stops the neuropathy pains. They could care less. The fake solution industry is making billions with no cures. Why rock the boat? I'm bitter, I wish for them to suffer.
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3 Reactions@julkun what really annoys me is platforms like Facebook allowing all these false claims posting adverts!
@blowerk1216 You are right and they monitor what you say. Mention you have a "toothache" and you will get tons of posts about toothache cures from all over the world. It sickens me. All fake money-making schemes. It should be illegal and prosecuted.