Complications with Peripheral Neuropathy

Posted by kadfrompa3232 @kadfrompa3232, Jul 25, 2024

I was diagnosed with PN in 2018 with symptoms of tingling and pain in my feet. First Medication was gabapentin, (caused dizziness and falling) along with baclofen. Now on Lyrica, Baclofen (3X's day) ,
Cymbalta at night for cramps, Lidocaine/Prilocaine cream on both feet, especially top and bottom of toes. The neuropathy is now in both feet, in calf muscles in both legs, Additional symptoms are pain, stabbing, shock like pain, balance issues (using cane) severe burning in both feet, both legs have redness where nerves are irreparably damaged. Pain is so bad at times I cannot walk without pain and it prevents me from walking and participating in many areas I loved to do in the past. Many alternative treatments, hard to know if any really work. thank you.

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rubonimo | @rubonimo | Mar 1 8:39am

Wow , Iamkj5, I had no idea a doctor would prescribe that much Gabapentin. I’m thinking that if I had to constantly take that much, and then have to keep increasing it from there to keep the peripheral neuropathy under control I would probably ask about the new technology out that is available. I’m happy for you that you are able to get relief in this way .

debrn2005 | @debrn2005 | Mar 1 1:34pm

I use Frankincense essential oil before bedtime on my feet and legs. I also use compression socks specifically for neuropathy at all times under my regular socks at all times. Usually I will wear another pair of socks as well because my feet are always cold. I have orthotic sneakers outside for extra support for balance. I often will look at my feet when I walk so I can see that they're solidly on the ground because of the constant numbness and lack of sensation for added safety.

scain | @scain | 5 days ago

I am afraid after reading your journey with PN. I will see the neurologist tomorrow (I've waited 6 months for this appointment!). I don't expect much after reading a lot of different comments made by those of you who have had this longer than me. Mine began about 3 years ago when my feet and ankles were swollen. My primary sent me for ultrasounds to rule out blood clots and then never followed up with me. On my own, I saw a podiatrist who scared me so much that I never returned. She did some quick tests on the soles of my feet and said it was neuropathy. She didn't know what kind of neuropathy but did say that she could probably build me a brace later on for better walking. As said, it was my first time seeing her and I had to race home and google neuropathy as I didn't know what it was. Then about a year and half ago, I was diagnosed with diabetes 2 and then the loss of feeling started in the soles of my feet. As I was taking Lyrica for a different problem, I can't say that I experience pain but more like restless leg syndrome with pins and needles in my feet and ankles. After reading a lot of different PN posts here, it seems that most neurologists are not up to speed in either diagnosing PN or having any helpful info for it so I will go tomorrow but not have much hope that I will get any answers. I think since I began reading these PN posts, I have learned more about it and how different people are affected by it and are trying to cope with it. I will post again after my visit if any light at all is shed on this insidious condition. Thank you all.