Communicating Challenges With Lewy Body and Dementia

Posted by Larry @larryh123, Jul 26, 2021

Hello:
This discussion is being put together allow LBD patients and caregivers a place to exchange ideas on our communication challenges.
As a LBD patient - I like to share some insight into what things look like from the patient side. I call it - from "in here".
I encourage other patients to chime in.

I will be posting some tips daily for communication - if that is what you would like.

Looking forward to growing this discussion and learning from and with all of you.

Caregivers - always remember that we love you and appreciate what you do for us everyday. Even if we can't say it or even seem cognizant of it - our heart knows.

Peace
Larry H

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@tsc

Hi Larry, One thing that might help is asking for more specific information. If you ask your son how his day at work went, maybe try asking, what was the best thing that happened at work today, or the worst, or the funniest. It will narrow the focus, reduce the amount of information you're receiving and maybe stand out because it's a superlative -therefore memorable. I worked in Huma Resources for years and that's a technique employed in Behavior Descriptive Interviewing. Best, tsc.

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Funny you should mention this. It is one of the strategies that my wife and I use for me. For instance instead of where should we go for lunch is a big deal for me. Way too much to process plus a decision to be made. So she will narrow down the choices to start. She will break it down to like Italian of Mexican. I can usually manage that one.

Excellent to think of the things we do as a coping mechanism can be used to help me when asking questions of others - to narrow down the scope hoping it wont get too complicated.

Thanks!!!

Peace
Larry H

REPLY
@larryh123

Funny you should mention this. It is one of the strategies that my wife and I use for me. For instance instead of where should we go for lunch is a big deal for me. Way too much to process plus a decision to be made. So she will narrow down the choices to start. She will break it down to like Italian of Mexican. I can usually manage that one.

Excellent to think of the things we do as a coping mechanism can be used to help me when asking questions of others - to narrow down the scope hoping it wont get too complicated.

Thanks!!!

Peace
Larry H

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My pleasure!

REPLY
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