To @mpc1@debbie1956 I was just diagnosed this year at 63 YO. My spine and hip DeXa score are similar to yours (spine -3.2, hip -2-2). I have also opted not to go on medications. Can you tell me what actions you are taking to slow down/reverse your bone loss?
I had to ask my endocrinologist to do the tests to rule out any underlying causes. Vitamin D deficiency and low intake of calcium were the only items of concern.
I just started collagen this month. I use OsteoNaturals sold by Dr McCormick. I also eat a balanced diet, trying to get more than the minimum amount recommended by the RDA of calcium and proteins. I make sure I include prunes (everyday), kale, salmon, apple cider vinegar, broccoli, lean proteins, yogurt, cheeses, fermented foods etc. into my diet. I take a Vitamin D supplement (it has Vitamin D3, K1,K2). I average 8,000 steps a day. I do Dr Loren Fishman’s 12 yoga poses every other day. I lift weights 2-3 times a week, although I haven’t gone past 10 pounds yet. I do balancing exercises. I also play golf 2-3 times a week!!
I only weigh 100 pounds, and have read that thin and fine boned women’s DEXA scores can be skewed to be worse than they actually are because of the small size of their bones. I wish there was a definitive way to find out!! My CTX score is not crazy (479) so I am not rapidly destroying bone; I am trying to work on this by looking for foods that lower osteoclast activity. My P1NP is 63.
Reading @mpc1 story, I feel as if OP has a lot to do with genetics. My grandmother and mother both had OP. They never went on medications; it wasn’t invented yet for my grandma which was probably a good thing! She fractured her wrist in her 80s and she lived until she was 95. My mother refused medication in the 1990s. She fractured just last year at 90 years old when she tripped and fell; she had a hip replacement and she was walking the next day!!. She still drives!! I hope my genes take after them!!
I am going to get a DEXA next year even if I have to pay for it and see if my efforts help. I will also look for a place that can do a TBS score. If I get worse, it will be a difficult decision about medication because I feel strong and am so active now. If I am holding steady, then it will be a win because all the other things I am doing is beneficial for my body. I feel scared about all the side effects people experience with the meds, and it’s not from reading about it!! I have several friends who have taken them (fosamax, reclast, prolia), and they have joint pains, flu like symptoms, and 1 of them has experienced multiple fractures while on Prolia!! My friend who is on Prolia has had skin and eye problems (she never has them before), and this is a person who was very active; she lifted weights, would jog for miles!!
Please keep us posted. I stopped Tymlos because I felt awful while on it and I'm dreading going back on another medication. I am also an active 63 year old.
Please keep us posted. I stopped Tymlos because I felt awful while on it and I'm dreading going back on another medication. I am also an active 63 year old.
@loh can you share your tscores? Did you get a FRAX score?
The main reasons I decided not to go on meds at this time are;
1) my FRAX score is very good. Less than 1% chance of a hip fracture in the next 10 years and less than 4% chance of a major osteoporotic fracture
2) i have no underlying issues other than vitamin D deficiency and low calcium intake which I have addressed with the help of a dietitian
3) I am a very active person
4) i have great balance. I can close my eyes and do tree poses, etc
5) I am petite, have fine bones, which from what I have read about DEXAs can skew my BMD so it looks like I have less compared to others
Yes, I will post next year after my next DEXA, hoping that all the hard work I am doing (lifting, supplementing, eating well, etc) make a difference!!
I just started BHRT about a month ago and am hoping doc will increase estradiol when I see her in 3 months. Dose I am on now is not bone protective. I also use Osteonaturals collagen. I get most of my calcium from my diet, stay active, take a Vit D supplement and a low dose of K2. I have lifted weights on and off but am currently beta testing an app for building bone strength. Nothing else.
I am currently on BHRT, but am curious as to what a bone protective dose would be. Will you share some more info on that? My integrative dr is great, but OP is not her specialty.
@daisy17, Thanks so much for your comprehensive reply. I use Great Lakes Collagen which I assume hasn't been studied. I'm trying to decide if I should switch to Fortibone.
I would suggest looking very carefully at the results presented in Table 2 of this study.
For the placebo group, the T-score for the spine went from -2.25 to -2.28 over the 12 month period of time.
For those on Fortibone, it went from -2.54 to -2.47. A slight improvement.
However, this was a small study (131 people) and the standard deviation of each of these values in 0.6. That means the range for the -2.47 value is -1.87 to -3.07. Statistically there was an improvement. https://pmc.ncbi.nlm.nih.gov/articles/PMC5793325/
The study I saw the results of compared Fortibone to a placebo; not to another hydrolyzed collagen peptide. Who knows; a cheaper collagen may even be better or the same. Marketing!
@normahorn - YES! Marketing. There is so much deceitfulness in it. I am affiliated with a wellness manufacturer and boy have I heard the stories in 33 years. We have a very truth focused research and development team - money never rules.
I am so skeptical to purchase or recommend purchasing any supplement off a store shelf these days - and even health food stores.
There are so many collagen supplements, can be confusing…i check with consumers lab and sites like the Mayo Clinic to try and figure this out… not a fan of powders at all… limited choices for caps or tabs..still looking..if anyone has some info, please post it !
Please keep us posted. I stopped Tymlos because I felt awful while on it and I'm dreading going back on another medication. I am also an active 63 year old.
-
Like -
Helpful -
Hug
2 Reactions@loh can you share your tscores? Did you get a FRAX score?
The main reasons I decided not to go on meds at this time are;
1) my FRAX score is very good. Less than 1% chance of a hip fracture in the next 10 years and less than 4% chance of a major osteoporotic fracture
2) i have no underlying issues other than vitamin D deficiency and low calcium intake which I have addressed with the help of a dietitian
3) I am a very active person
4) i have great balance. I can close my eyes and do tree poses, etc
5) I am petite, have fine bones, which from what I have read about DEXAs can skew my BMD so it looks like I have less compared to others
Yes, I will post next year after my next DEXA, hoping that all the hard work I am doing (lifting, supplementing, eating well, etc) make a difference!!
-
Like -
Helpful -
Hug
2 ReactionsI am currently on BHRT, but am curious as to what a bone protective dose would be. Will you share some more info on that? My integrative dr is great, but OP is not her specialty.
-
Like -
Helpful -
Hug
1 ReactionI would definitely switch to a product containing Fortibone since studies show that it increases bone density.
Agree!
I would suggest looking very carefully at the results presented in Table 2 of this study.
For the placebo group, the T-score for the spine went from -2.25 to -2.28 over the 12 month period of time.
For those on Fortibone, it went from -2.54 to -2.47. A slight improvement.
However, this was a small study (131 people) and the standard deviation of each of these values in 0.6. That means the range for the -2.47 value is -1.87 to -3.07. Statistically there was an improvement.
https://pmc.ncbi.nlm.nih.gov/articles/PMC5793325/
-
Like -
Helpful -
Hug
3 Reactions@normahorn - YES! Marketing. There is so much deceitfulness in it. I am affiliated with a wellness manufacturer and boy have I heard the stories in 33 years. We have a very truth focused research and development team - money never rules.
I am so skeptical to purchase or recommend purchasing any supplement off a store shelf these days - and even health food stores.
-
Like -
Helpful -
Hug
2 Reactions@daisy17 I would be interested in those studies...in a chat with my product division, we could not find anything significant.
-
Like -
Helpful -
Hug
1 Reaction@mpc1 Hahaha - my R&D department used "throwing spaghetti to the wall" - hoping something sticks. I think the dirt idea works, too...
@nycmusic My company's R&D found that most collagen powders were like throwing spaghetti to the wall hoping some will stick.
Theirs is designed to work in synergy with the body and cause it to produce more of its own collagen...that is what I chose. Mela Boost Collagen
-
Like -
Helpful -
Hug
3 Reactions