Chronic Lymphocytic Leukemia

Posted by sofaramnotdead @sofaramnotdead, Aug 31, 2017

I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in remission from
CLL? Thanks.

Interested in more discussions like this? Go to the Blood Cancers & Disorders group.

This week My Dr say’s I am in Remission from Dec 2017(147,000 to 6,200 ) Nov 2018 on Chemo -Imbruvica 420 mg. Day

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Has anyone started treatment with green tea extract for CLL ?

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@mumzie

Has anyone started treatment with green tea extract for CLL ?

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Hello @mumzie, welcome to Connect. If you don't mind sharing a bit more, have you been diagnosed with CLL? I have not heard of treating CLL with green tea extract, is this something that your medical provider or hematologist recommended?

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@mumzie

Has anyone started treatment with green tea extract for CLL ?

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@mumzie, your post inspired me to do some quick searching about green tea extract for CLL patients, and the early research is promising on its ability to kill leukemia cancer cells. Here are a few resources that I found on this topic after you brought it to attention to the community:

https://newsnetwork.mayoclinic.org/discussion/green-tea-extract-appears-to-keep-cancer-in-check-in-majority-of-cll-patients/
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/diagnosis-treatment/drc-20352433

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Last week my VA oncologist says I am in Remission after 10 months on Imbruvica. Also, he was moving to Calif to be w/ his son. He was Oncologist for Albuquerque and S Colorado and West Texas. Going to be a great loss ! My Exposure to Agent Orange in 1970 has really taken a toll on my health.Insulin Dependent for 47 yr’s, Cornary Artery Disease (2 heart attacks + Heart Surgery) I am 71 old and have 2 precious Granddaughter’s and looking for more days with them. Open to all questions 💒

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@JustinMcClanahan

@mumzie, your post inspired me to do some quick searching about green tea extract for CLL patients, and the early research is promising on its ability to kill leukemia cancer cells. Here are a few resources that I found on this topic after you brought it to attention to the community:

https://newsnetwork.mayoclinic.org/discussion/green-tea-extract-appears-to-keep-cancer-in-check-in-majority-of-cll-patients/
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/diagnosis-treatment/drc-20352433

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Justin thank u for the info on green tea extract research. The exact info I read , I am just not well learned in computer copying & sending. We will ask our hematologist for his opinion. Wonder where I could find locate them, maybe a health & v itamin sstore. My husband & I are 71 , we live in Michigan. Thank you for replying . Too funny my husband said he just found them available at Walmart on the computer. Take care,Mumzie

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@mumzie

Justin thank u for the info on green tea extract research. The exact info I read , I am just not well learned in computer copying & sending. We will ask our hematologist for his opinion. Wonder where I could find locate them, maybe a health & v itamin sstore. My husband & I are 71 , we live in Michigan. Thank you for replying . Too funny my husband said he just found them available at Walmart on the computer. Take care,Mumzie

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I have been buying my EGCG online from Piping Rock for about two years now and it has definitely helped reduce my lymphs levels. I take a 600mg capsule each morning and night. This is the link to their website. https://www.pipingrock.com/egcg.

I don't know what dose should be taken so I took a punt and settled on one capsule morning and night. Anyone know?

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@ssid

I am so happy to hear this, I believe others are in remission. I have been on the watch n wait program since 2013…
Today I have an appointment with my oncologist, hopefully I will continue with this even though my WBC count has been going up.
Take care,
Cindy

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How is your CLL? It's been 4 years since your 2017 post.

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@JustinMcClanahan

@mumzie, your post inspired me to do some quick searching about green tea extract for CLL patients, and the early research is promising on its ability to kill leukemia cancer cells. Here are a few resources that I found on this topic after you brought it to attention to the community:

https://newsnetwork.mayoclinic.org/discussion/green-tea-extract-appears-to-keep-cancer-in-check-in-majority-of-cll-patients/
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/diagnosis-treatment/drc-20352433

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I see where back in 2010, a Mayo physician reported that "green tea extract keeps cancer in check in the majority of CLL patients."

I read it. A doctor said that it is not a replacement for chemotherapy. And it ends with “Without a phase III clinical trial, we cannot make a recommendation that EGCG be used by CLL patients." And a couple of years later I read that EGCG
can cause transminitis (elevated liver levels).

So what happened in the phase III clinical trial? Thanks.

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@sofaramnotdead

I see where back in 2010, a Mayo physician reported that "green tea extract keeps cancer in check in the majority of CLL patients."

I read it. A doctor said that it is not a replacement for chemotherapy. And it ends with “Without a phase III clinical trial, we cannot make a recommendation that EGCG be used by CLL patients." And a couple of years later I read that EGCG
can cause transminitis (elevated liver levels).

So what happened in the phase III clinical trial? Thanks.

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It appears that the promise was not fulfilled, and perhaps later clinical phases were dropped. Here is an article from the NIH from 2018, stating that the efficacy was not proven in multiple small trials, and there were a number of side effects. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7397615/
Does this help answer your question?
Sue

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