1. < Blood Cancers & Disorders

Chronic Lymphocytic Leukemia: Anyone else in remission?

Posted by surreal name @sofaramnotdead, Aug 31, 2017

I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in remission from
CLL? Thanks.

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stuartg | @stuartg | Nov 27, 2018
In reply to @mumzie "Justin thank u for the info on green tea extract research. The exact info I read..." + (show)
@mumzie

Justin thank u for the info on green tea extract research. The exact info I read , I am just not well learned in computer copying & sending. We will ask our hematologist for his opinion. Wonder where I could find locate them, maybe a health & v itamin sstore. My husband & I are 71 , we live in Michigan. Thank you for replying . Too funny my husband said he just found them available at Walmart on the computer. Take care,Mumzie

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I have been buying my EGCG online from Piping Rock for about two years now and it has definitely helped reduce my lymphs levels. I take a 600mg capsule each morning and night. This is the link to their website. https://www.pipingrock.com/egcg.

I don't know what dose should be taken so I took a punt and settled on one capsule morning and night. Anyone know?

REPLY
surreal name | @sofaramnotdead | Jul 30, 2021
In reply to @ssid "I am so happy to hear this, I believe others are in remission. I have been..." + (show)
@ssid

I am so happy to hear this, I believe others are in remission. I have been on the watch n wait program since 2013…
Today I have an appointment with my oncologist, hopefully I will continue with this even though my WBC count has been going up.
Take care,
Cindy

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How is your CLL? It's been 4 years since your 2017 post.

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surreal name | @sofaramnotdead | Jul 30, 2021
In reply to @JustinMcClanahan "@mumzie, your post inspired me to do some quick searching about green tea extract for CLL..." + (show)
@JustinMcClanahan

@mumzie, your post inspired me to do some quick searching about green tea extract for CLL patients, and the early research is promising on its ability to kill leukemia cancer cells. Here are a few resources that I found on this topic after you brought it to attention to the community:

– https://newsnetwork.mayoclinic.org/discussion/green-tea-extract-appears-to-keep-cancer-in-check-in-majority-of-cll-patients/
– https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/diagnosis-treatment/drc-20352433

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I see where back in 2010, a Mayo physician reported that "green tea extract keeps cancer in check in the majority of CLL patients."

I read it. A doctor said that it is not a replacement for chemotherapy. And it ends with “Without a phase III clinical trial, we cannot make a recommendation that EGCG be used by CLL patients." And a couple of years later I read that EGCG
can cause transminitis (elevated liver levels).

So what happened in the phase III clinical trial? Thanks.

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1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Jul 30, 2021
In reply to @sofaramnotdead "I see where back in 2010, a Mayo physician reported that "green tea extract keeps cancer..." + (show)
@sofaramnotdead

I see where back in 2010, a Mayo physician reported that "green tea extract keeps cancer in check in the majority of CLL patients."

I read it. A doctor said that it is not a replacement for chemotherapy. And it ends with “Without a phase III clinical trial, we cannot make a recommendation that EGCG be used by CLL patients." And a couple of years later I read that EGCG
can cause transminitis (elevated liver levels).

So what happened in the phase III clinical trial? Thanks.

Jump to this post

It appears that the promise was not fulfilled, and perhaps later clinical phases were dropped. Here is an article from the NIH from 2018, stating that the efficacy was not proven in multiple small trials, and there were a number of side effects. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7397615/
Does this help answer your question?
Sue

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