CKD stage 4

Posted by htenaj @htenaj, Mar 24 1:10pm

CKD at the last quarter of stage 4. I'm so glad to have found you.

Interested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.

Ginger, Volunteer Mentor | @gingerw | Mar 25 5:29pm

@htenaj Welcome to Mayo Clinic Connect! I am glad you have found us, but also sad that you are in Stage 4 of kidney disease. Please take some time to look through the various conversations in the Kidney Support Group. I bet you will find some information that will help you. And please, if you have questions for me, please let me know!

Has your medical team figured out what caused your kidney situation?
Ginger

htenaj | @htenaj | Mar 25 9:57pm

Thank you so very much for welcoming me to the group, Ginger. I was so glad to have found you. And no, there has been no conversation re what caused my CKD. As a matter of fact, I had no idea that there might have been a conversation. 🤔

cras | @cras | Apr 2 10:49am

I am glad to have found this group. I was recently diagnosed as stage 4 CKD and am in a bit of shock.

Ginger, Volunteer Mentor | @gingerw | Apr 2 11:38am

In reply to @cras "I am glad to have found this group. I was recently diagnosed as stage 4 CKD..." + (show)

@cras Welcome to Mayo Clinic Connect! Getting a diagnosis of Stage 4 CKD can indeed be a surprise. Did you have any warning, or notification from your medical team? What are the plans now for you?
Ginger

tjs41363 | @tjs41363 | Apr 2 5:18pm

just diagnosed. 62 years old. a bit of a shock..

tjs41363 | @tjs41363 | Apr 2 5:18pm

In reply to @cras "I am glad to have found this group. I was recently diagnosed as stage 4 CKD..." + (show)

me too. problems all stem from my bladder.

dianamcclaran | @dianamcclaran | 5 days ago

In reply to @tjs41363 "me too. problems all stem from my bladder." + (show)

@tjs41363

dianamcclaran | @dianamcclaran | 5 days ago

I’m stage 4 CKD and I know what has brought me here. I was on lithium when I was 25 for my BiPolar disease. I wasn’t on it that long, but long enough to put my kidneys into a slow decline causing now at the age of 67 I’m stage 4. It’s been frustrating dealing with this knowing there was nothing I could do to stop it. I just watch what I put in my mouth and I control my weight.

mrainne | @mrainne | 4 days ago

In reply to @dianamcclaran "I’m stage 4 CKD and I know what has brought me here. I was on lithium..." + (show)

@dianamcclaran
I’m also stage 4 after 40 years on lithium. My kidneys held out all those years but started to decline in 2014. My eGFR is 19 and I’m in the process of qualifying for a kidney transplant. It took a while to agree since I’m 68 years old. I’m told having scarred tubules, no proteinuria, normal BP and I’m not diabetic, my kidneys could hang in there for awhile. But all it takes is a serious infection and that changes everything. Best wishes to your journey.

kkellner | @kkellner | 3 days ago

In know this is sort of off topic, but for those of you who took lithium, but are not any more, did you replace it with an effective medication? I have tried to go off and it has not worked.