Cirrhosis of the Liver: What to expect when waiting for a transplant?

Wow! I'm sure that was an immediate change of life moment. I know exactly how you feel, I have been there in 2020. I had severe cirrhosis that affected my kidneys as well. My GI doctor even told my wife there was nothing more she could do for me and I could go anytime. She then referred me to UW hospital for a multiple organ transplant if I lived that long, well obviously I did and I did! There will be many tests ahead for you, but keep the faith that God will be your consulting physician, and I'm sure you will be just fine. Do as the doctors instruct you and trust that they want you well. That's what they do for a living.
Calm down, it might sound easy to say but it will make the process easier to accept.
God be with you

I am sorry about your health. Isuffered overnight a collapse (vomiting blood ) that in the middle of COVID put me in the ER. Very similar to ur problem. I went immediately to the best local hospital who detected and knew my problem. Medicine kept me alive but I was immediately included in the liver recipient list. Was called 4 times but only the last qualified me to received a transplant. 6 hrs operation and so far the liver is improving with my organs -no rejection- the recovery has been hard for me, 5 mo. And going once a week for blood ck, that was easy but I developed strong tremors that force me back in ER where I am now… if you have strong wish to live, do 2 thing, get a great doctor to give you medicine to “keep u alive n out of complications, 2 ask to be included in the National registration of liver recipients…. I truly hope u have a good insurance because gets expensive. Hugs going your way. Namaste

Im just about to start. I will leave some very caring doctors in New York to move to Florida to the mayo clinic. In hopes of getting on a liver donor list. my meld score is approx 16 (done by my wife) Don't know what to expect. Keep you all posted.

I just had an MRI ELASTOGRAPHY and it showed stage 4 Fibrosis. Dr's PA called and said you need to see Hepatologist. The Hepatologist was away and I am scared also. I read this is a terminal illness. I live in NY. I have reached out to another hospital and the earliest date is May 26th. I am also besides myself. I have several autoimmune disorders, GI, and Neurological. I had my gallbladder removed and I read this can cause scarring of the liver. I also wrote to the Mayo Clinic in Florida to see if they can help. Awaiting a call back. I have terrible left sided pain. My mom died of Colin Cancer. I'm really scared. Try and see if any other good hospital can rake you. My liver enzymes have always been slightly high. Prior CT scan 2017 showed possible Chirrosis, but said to correlate with liver enzymes. My liver should have been checked yearly This is a silent disease. I'll pray for you

I was diagnosed stage 3 via the fibroscan and had MRI - no tumors found. Did upper endoscopy looking for ascites (sp). None found. I have a genetic disease called alpha 1 antitripsan deficiency that can cause liver and lung problems. If I’m deficient they can do infusions. I thought my life was about over. As it is now, I keep having to put out medically related “fires”. So in that respect I’ve been preoccupied. I have to find another liver doctor. I’m scared to learn what he will tell me. Its very frightening. With so many health issues, I’m not sure I’m gonna come out ahead of it all. I’m feeling my mortality. I’m sorry this isn’t a very helpful post. Just wanted to let you know you are not alone. Mine was found a couple of years ago.

I have congenital hepatic fibrosis. This disease was diagnosed 15 years ago, and has led to many different procedures such as TIPS and emergency room visits with bacteria infections. I did at one time enjoy a glass of wine or a cold beer after working in the yard, but obviously no longer. YOU are not alone in this journey. The mental aspect will wear on you or the fear of not knowing when the next emergency room visit will happen. I try and stay focused on the positives, thankful to be here and contributing to society -working, family, and friends. The transplant may some day come, although my MELD is low, but we must continue to be as healthy as possible-physically and mentally.

Did you need a transplant. I am so scared, as I am newly diagnosed. I just pray

Please find a hepatologist who specifically specializes in liver cirrhosis and transplantation.