Chronic Venous Insufficiency and Tachycardia

Posted by jameskate22 @jameskate22, Mar 6, 2023

Hi, everyone! [Long post, please stay and read...]

I was diagnosed with CVT in my legs (all four veins) and had an ablation last year to resolve it. The doctor confirmed, the surgery was a success. I asked him if the CVT could impact my heart at all? He said he didn't think so. Well, I also have suffered from a high heart rate since I was a kid, and I was at my thinnest then. Anyway, my mom had rheumatic fever, and when she was hospitalized, they discovered she also had a heart murmur. My sister also had a heart murmur when she was a newborn. I've been pregnant twice - one with an unknown congenital heart defect, and another with Hypoplastic left heart syndrome.

I am constantly dizzy, especially when I get up from a sitting, crouching, or laying down position. It feels like the world is spinning, and my HR increases from 65 to 111 (most recent reading). And any cardio or activity that would raise my HR, it skyrockets through the roof (160-180 sometimes higher). I also become very nauseous, and I will throw up sometimes.

I've been to a cardiologist in the past, and I was told I had anxiety, and to lose 10lbs. I've also been to the ER, they did an EKG, and told me I was having a panic attack.

But this has been through childhood, I had no reason to have panic attacks that young, my heart literally feels like it's going to beat out of my chest. I've woken up with a high HR and my bed felt like it was vibrating because of how fast and hard it was beating.

I have a cardiologist appointment on the 14th, but I've been gaslit so many times by doctors, I'm just looking for some answers so I can go in prepared. I feel like it does align with POTS to some degree, but it seems to be a popular condition on TikTok, and I know there's a lot of exaggeration and misinformation there.

Sorry for the long post and thank you for any help!

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daniel777 | @daniel777 | Mar 9, 2023

Have you ever had an echo cardiogram? This might show an issue causing your symptoms.

heyjoe415 | @heyjoe415 | 1 day ago

Hi James.

Just ran across this post from 2023. How are you doing?

FWIW, I had my first panic attack at 18. I'm 71 now. My panic attacks started in 1972. There wasn't much help available at that time. I was told by our PCP I simply had to "grow up". That was heartbreaking at the time - but the Dr and my family were working with what they knew, and didn't know.

I took up marathon running in my late 20s to mid 40s and that helped with anxiety, depression, everything. By the time I had another panic attack, 2002, I discovered there were medicines to help with anxiety and depression, along with talk therapy. I used both, and still do.

So those are the things that helped me. I hope you have gotten some relief as well.

All the best!

Joe

Janell, Volunteer Mentor | @jlharsh | 1 day ago

In reply to @heyjoe415 "Hi James. Just ran across this post from 2023. How are you doing? FWIW, I had..." + (show)

@heyjoe415 What a thoughtful reply, Joe. I am tagging @heyjoe415 so he has a better chance of seeing it.

Now seeing this I am interested to learn how you are doing, James. You originally wrote describing your situation and process of figuring out more about your venous insufficiency and tachycardia. At that time you were preparing for a cardiology appointment but not expecting much to come from it. I agree with @heyjoe415 that knowledge and care keeps changing.

How are you doing? Have you found a doctor(s) to help you?

heyjoe415 | @heyjoe415 | 10 hours ago

In reply to @jlharsh "@heyjoe415 What a thoughtful reply, Joe. I am tagging @heyjoe415 so he has a better chance..." + (show)

Thanks for your kind words Janell. I picked a bad time to discover I had chronic anxiety (1972). And while panic attacks were few, they were terrifying.

I hope we hear from James.

Joe

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