Chronic subjective dizziness

Posted by John L @johnl1, Mar 17, 2013

February 2013. After years of experiencing unexplained “dizziness,” my words, I just received the diagnosis of CSD. It became intolerable this last fall, I was unable to function. Everyone around me was so pleased to have a label for it, I was hoping for more, like relief. At this site I have seen reference to Xanax and klonopin, but not Sertraline. I’m planning on trying Sertraline, I’m surprised there is no mention of it here.

I figured I had Meniers desease, they say no, because it’s not episodic; it’s constant. And they claim ear damage can’t explain my symptoms. Yet I have been told by friends that they know of others, who probably have ear damage (from running chainsaws for years) complain of constant dizziness. Guess I still wonder about that.

breath air, eat food,
J

@trishanna

@colleenyoung do you have anyone currently discussing Meniere’s disease and tinnitus? Mine has flared after a forty year absence and I’m also dealing with tinnitus. Just wonder if anything is new with either one.

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I have both regular (high-pitched) tinnitus and pulsatile tinnitus. I feel and hear my heartbeat much of the time, but it’s louder when I wake up, after meals, and whenever I exercise or move around a lot. I can feel the throbbing, sometimes in my head, sometimes in my chest or the back of my neck. I have had a treadmill test, an MRI of my head with MRa dye) around my ears, and carotid artery doppler ultrasound. All were okay. But although I have a hard time with MRIs, I wish doctors would also do an MRI/MRA of my upper neck, which has never been checked. My worry is something like an aneurysm, although it may not be anything like that. I just wish , that since pulsatile tinnitus is usually a vascular problem, They’d also check my upper neck at the base of my skull. They don’t feel it’s necessary. Does anyone here have anything like this? I’m not worried about the ringing tinnitus, but the heart-pounding kind every day is a little scary, even though I’ve had it for 6 years and nothing bad has happened. Your thoughs or comments?

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@colleenyoung

Hi @trishanna,
I’m tagging @johnl1 who wrote a while back about Meniere’s disease. I hope he’ll rejoin the conversation.
Trish, how frustrating it must be to deal with Meniere’s after a 40 year absence. Do you know what caused this episode? How are you managing it?

Several members have written about dealing with tinnitus. Here are a few discussions you may wish to check out:

– Hearing repeated sounds and echo in my ear http://mayocl.in/2loSK10
– Pulsatile Tinnitus and Carotid Fibromuscular Dysplasia (FMD) http://mayocl.in/2lAEeW9
– Live Q&A: Hearing Wellness: Signs, Symptoms, and Treatment http://mayocl.in/2lACpbN

I encourage you to continue the discussion here or perhaps start a new discussion dedicated to Meniere’s and tinnitus.

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@trishanna, the links are working for me. Can you please try again?
I will search for others talking about Meniere’s. No promises, but I do what we can. 🙂

In the meantime, I hope you have seen @suzanne321‘s message above. She just joined the community and would like to about tinnitus with you.

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@trishanna

@colleenyoung do you have anyone currently discussing Meniere’s disease and tinnitus? Mine has flared after a forty year absence and I’m also dealing with tinnitus. Just wonder if anything is new with either one.

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Wish I could offer some advice, but pulsatile tinnitus – at least based on my research – is a special catagory of tinnitus that’s beyond me. I have my own thoughts on tinnitus in general, and I will make one suggestion: have you seen an allergist especially relative to oats, wheat or corn allergies, and are you on a reduced sodium diet? Hope you find relief soon.

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Thanks, Colleen, I’ll try links again.

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@trishanna

@colleenyoung do you have anyone currently discussing Meniere’s disease and tinnitus? Mine has flared after a forty year absence and I’m also dealing with tinnitus. Just wonder if anything is new with either one.

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The high pitched ringing started after a serious virus that attacked my nervous system and inner ears. I also experienced some hearing loss. I haven’t been able to pinpoint any certain foods that make the ringing worse. I’m not on a reduced sodium diet, because my blood pressure is usually rather low. I’ve habituated to the ringing and often am not aware of it at all, The pulsatile type, though is a tougher thing to live with. It’s bad enough to have heart palps each day, but having to hear the beats like a drumming in my head….that is difficult.

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Hello @trishanna and @suzanne321, Thank you for posting to our Mayo Clinic Connect community site! Here you will meet others that are looking to talk with someone who is potentially experiencing a similar situation. Please know that we do not give medical advice, however we encourage you to share your story so we can all learn from each other.

I’m sorry to hear both of you are troubled by such symptoms. That must be tough to deal with on a daily basis.
@trishanna, Have you looked into VEDA (Vestibular Disorders Association) https://vestibular.ong/#? They are a major support group run by a nurse practitioner that you may be interested in. They have a significant amount of literature, most of which has been vetted through a scientific advisory committee. You could check to see if they have information on Chronic subjective dizziness (now called Persistent Postural-Perceptual Dizziness).
@suzanne321, Welcome to our community! Suzanne,you said that you have been living with this for 6 years. Are there days or weeks that seem to be better than others? Does the time of year affect your tinnitus?

I would like to introduce you both to @kariulrich, one of our Mentors on Connect, who has recently discussed the topic tinnitus. We will be sure to continue to connect you with other members who come here to discuss tinnitus, dizziness and or Menieres.

If you are interested in more information or obtaining an appointment at Mayo Clinic, please click here- http://mayocl.in/1mtmR63. I do know that Mayo Clinic ENT in Rochester has literature on Persistent Postural Perceptual Dizziness. You would be able to request that information through our appointment line.

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@jamienolson

Hello @trishanna and @suzanne321, Thank you for posting to our Mayo Clinic Connect community site! Here you will meet others that are looking to talk with someone who is potentially experiencing a similar situation. Please know that we do not give medical advice, however we encourage you to share your story so we can all learn from each other.

I’m sorry to hear both of you are troubled by such symptoms. That must be tough to deal with on a daily basis.
@trishanna, Have you looked into VEDA (Vestibular Disorders Association) https://vestibular.ong/#? They are a major support group run by a nurse practitioner that you may be interested in. They have a significant amount of literature, most of which has been vetted through a scientific advisory committee. You could check to see if they have information on Chronic subjective dizziness (now called Persistent Postural-Perceptual Dizziness).
@suzanne321, Welcome to our community! Suzanne,you said that you have been living with this for 6 years. Are there days or weeks that seem to be better than others? Does the time of year affect your tinnitus?

I would like to introduce you both to @kariulrich, one of our Mentors on Connect, who has recently discussed the topic tinnitus. We will be sure to continue to connect you with other members who come here to discuss tinnitus, dizziness and or Menieres.

If you are interested in more information or obtaining an appointment at Mayo Clinic, please click here- http://mayocl.in/1mtmR63. I do know that Mayo Clinic ENT in Rochester has literature on Persistent Postural Perceptual Dizziness. You would be able to request that information through our appointment line.

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Thanks for the new link – it’s very interesting.

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@trishanna

@colleenyoung do you have anyone currently discussing Meniere’s disease and tinnitus? Mine has flared after a forty year absence and I’m also dealing with tinnitus. Just wonder if anything is new with either one.

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I do apologise for not making my remarks clearer. With regard to my allergy question, I don’t think you would have an awareness of a possible allergy, since it affects the inner ear. In other words, the allergy would cause your symptoms, but only over a period of time. And my other comment, too, about sodium was meant to suggest a low-sodium diet might help ease your symptoms.

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@trishanna

@colleenyoung do you have anyone currently discussing Meniere’s disease and tinnitus? Mine has flared after a forty year absence and I’m also dealing with tinnitus. Just wonder if anything is new with either one.

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I understand, and I appreciate your comments. My dad used to pass out because of low blood pressure (and I sometimes feel lightheaded when my blood pressure drops some, so I’ve been told to get enough sodium daily. I try not to use more more than enough, but I’m not supposed to cut it way back either. 🙂

As for the oats, wheat and corn, that’s something to consider. Thanks.

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It took me years to figure out that i have an EMF sensitivity. I wonder if any of you have a sensitivity to wireless as well? I thought I was alone but it turns out, it is a worldwide problem. http://www.bioinitiative.org/ here is some science behind it (lots of scientific studies under Reported Biological Effects)
I wish I was able to type more now but the “treatment” for EMF sensitivity is to get rid of the wireless – use wired instead or stay away from it. I learned a lot from this guy too http://www.electricsense.com/category/electrical-sensitivity/are-you-es/

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I do get dizziness from time to time, I call it my wobbly day. I was diagnosed with Labrynthitis in October 2015 and was hospitalized for 4 days. It was a nightmare! Apparently caused by a virus which has left lasting effects of dizziness, lack of concentration, tinnitus with sometimes pulsing, certain noises (especially bass) can set it off, I have trouble staying focused and sometimes terrible anxiety. I never know when it’s going to hit but certainly happens at least a couple of times a week and can last for days. Occasionally it causes nausea, if the symptoms are bad at any particular time I cannot drive and if it is sunny, or dark out shadows become a real problem for me so at times, I need a walking stick or cane since I love to walk. Exercise has been a challenge because my balance is not always optimal. I am also unable to work because I am not dependable if symptoms are an issue on any given day. I most often feel like my head is on a spring, and feels like it bobbles when my foot hits the floor. I was told at first, it may take a few weeks, then a few months, now, no one has any answers for me. Very frustrating. I have heard that someone else that came down with it after me was told that it was linked to Hand and Foot disease, which her two children happened to have when she came down with it. Interestingly enough another lady who came down with it about 2 months after I did, her 2 children also had Hand and Foot as well did my Granddaughter about a week before I came down with Labrynthitis. I’ve yet to have a doctor confirm it with my diagnosis.

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@labrynthitis

I do get dizziness from time to time, I call it my wobbly day. I was diagnosed with Labrynthitis in October 2015 and was hospitalized for 4 days. It was a nightmare! Apparently caused by a virus which has left lasting effects of dizziness, lack of concentration, tinnitus with sometimes pulsing, certain noises (especially bass) can set it off, I have trouble staying focused and sometimes terrible anxiety. I never know when it’s going to hit but certainly happens at least a couple of times a week and can last for days. Occasionally it causes nausea, if the symptoms are bad at any particular time I cannot drive and if it is sunny, or dark out shadows become a real problem for me so at times, I need a walking stick or cane since I love to walk. Exercise has been a challenge because my balance is not always optimal. I am also unable to work because I am not dependable if symptoms are an issue on any given day. I most often feel like my head is on a spring, and feels like it bobbles when my foot hits the floor. I was told at first, it may take a few weeks, then a few months, now, no one has any answers for me. Very frustrating. I have heard that someone else that came down with it after me was told that it was linked to Hand and Foot disease, which her two children happened to have when she came down with it. Interestingly enough another lady who came down with it about 2 months after I did, her 2 children also had Hand and Foot as well did my Granddaughter about a week before I came down with Labrynthitis. I’ve yet to have a doctor confirm it with my diagnosis.

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I was diagnosed with the same type of virus in 1997, and I still get many of the same symptoms now and then. I don’t have trouble staying focus or nausea, but I do experience the other symptoms, especially pulsing tinnitus (can hear and feel my heart throbbing) and tiredness. I wonder whether it really is linked to hand ad food disease.

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