Chronic subjective dizziness

Posted by John L @johnl1, Mar 17, 2013

February 2013. After years of experiencing unexplained “dizziness,” my words, I just received the diagnosis of CSD. It became intolerable this last fall, I was unable to function. Everyone around me was so pleased to have a label for it, I was hoping for more, like relief. At this site I have seen reference to Xanax and klonopin, but not Sertraline. I’m planning on trying Sertraline, I’m surprised there is no mention of it here.

I figured I had Meniers desease, they say no, because it’s not episodic; it’s constant. And they claim ear damage can’t explain my symptoms. Yet I have been told by friends that they know of others, who probably have ear damage (from running chainsaws for years) complain of constant dizziness. Guess I still wonder about that.

breath air, eat food,
J

Do you have problems with shadows as well? Fatigue is a huge thing too. I’m so sorry it’s been going on so long for you. I get very discouraged, but in the grand scheme of things, I know it could be a lot worse.

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Suffered with migraines, benign positional vertigo and ringing in ears. I believe they at all related. My migraines at due to estrogen and cycle, nothing else. Have had severe vertigo attacks that made me stay upright in bed for days. Take benadryl to lessen symptoms. I would love to be free from this circus of maladies!

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Hello @labrynthitis and @annemusic! Welcome to Mayo Clinic Connect! I would like to introduce you to @trishanna and @suzanne321 who are both here discussing Chronic subjective dizziness (now called Persistent Postural-Perceptual Dizziness).

@trishanna, did you find anything helpful on the VEDA (Vestibular Disorders Association) site that would be helpful to share with the rest of the group?

are there any tips or tricks that have helped your daily living that you can share and possibly help one another? I imagine this to be a very debilitating and tough thing to deal with. Sending healing thoughts to all of you….

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I did check out the VEDA website, sounds interesting. I have been unable to work since moving to Niagara Falls, Ontario, I’m not sure if there are any clinics practicing this method of treatment, if there are, most likely it isn’t covers under our Ontario Health Insurance Plan so wouldn’t be able to afford any treatment. I have been pushing myself since I came down with it, I have no control of when the symptoms resurface. Although I rarely get nauseous and full on dizzy anymore, I’m often fatigued and have a feeling of being overwhelmed. Thankfully, my husband is very supportive.

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@jamienolson

Hello @labrynthitis and @annemusic! Welcome to Mayo Clinic Connect! I would like to introduce you to @trishanna and @suzanne321 who are both here discussing Chronic subjective dizziness (now called Persistent Postural-Perceptual Dizziness).

@trishanna, did you find anything helpful on the VEDA (Vestibular Disorders Association) site that would be helpful to share with the rest of the group?

are there any tips or tricks that have helped your daily living that you can share and possibly help one another? I imagine this to be a very debilitating and tough thing to deal with. Sending healing thoughts to all of you….

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VEDA is quite interesting, but as is described, there are many forms or types of vestibular disorders. Since I was without symptoms for about 40 years, I wondered if there were any new ideas about treatment for my specific kind – Meniere’s – allergy based – and I really didn’t find anything especially enlightening. My symptoms (there is no cure) are under control again, and that was achieved through diet (especially low salt), plenty of liquids, and avoiding certain foods which for me are triggers. I do not understand why diuretics don’t play a part in treatment – at least, not that I can find. My second problem is tinnitus – is anyone devoting a site to tinnitus? Best one I’ve found is the British Tinnitus Association – uk. Wish I could be of more help.

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Thank you for sharing your experiences It seems that I don’t feel alone. In my case, I have dizziness over one year and a half, is a constant dizziness as floating sensation and spinning to my left side. sometimes i feel an oppression inside my ears and head aches I don’t have problems of balance but the sensation is like I am going down. My MRI is good and blood tests good.
People suggest to me to go to Mayo Clinic since in my country doesn’t have an Otoneurology experts.
Does anyone had a good experience at Mayo Clinic treating this disorders?
it is very stressful and desperate to have this.
thank you for your help.

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@labrynthitis

Do you have problems with shadows as well? Fatigue is a huge thing too. I’m so sorry it’s been going on so long for you. I get very discouraged, but in the grand scheme of things, I know it could be a lot worse.

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I;m not certain what you mean by shadows, but I do have a real problem with heavy fatigue in the afternoons. I had to stop selling at my favorite farmer’s market because I was too tired to even go there to sell. The worst thing for me, though, is pulsatile tinnitus (hearing my pulse in my ear and feeling throbbing in my head, back of neck, chest, or stomach). That gets worse every time I wake up, eat, or move around/exercise. So I don’t go for walks like I used to, although it would be good for me otherwise. I can’t stand the loud pounding and throbbing sensation when I exercise harder. Sigh…

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@labrynthitis

Do you have problems with shadows as well? Fatigue is a huge thing too. I’m so sorry it’s been going on so long for you. I get very discouraged, but in the grand scheme of things, I know it could be a lot worse.

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So if I’m getting the sun in my eyes but walk on a shadow, or visa versa, it throws me off. If it’s a sunny day and I’m walking under trees, it feels like a strobe light. Noises, especially bass, will start the pulsating in my ears and back of my neck, if it’s not there already. Walking at night under lamp posts or directional light will also set me off balance. Perhaps the pulsating in your chest is the anxiety that is caused by the other. I was told that my fatigue is because my brain is always compensating or retraining itself from the original symptoms of the virus and now the residual effects of the Labrynthitis that I contracted back in October 2015. I have found that forcing myself to do things outside my comfort zone has helped to retrain my brain, but still having bad days, where my balance is way off or find myself in situations where the symptoms are exacerbated, like sometimes in a store where my senses are acutely stimulated and go into overload. I am currently trying to work out on an elliptical machine that we have trying to regain some strength and prepare mentally and physically for walking this summer. I just have to work through it I think. Good luck, I really hope you can find a balance that will work for you, again, perhaps challenging your brain might help right itself to some degree and gradually you might find that you will have less fatigue and more good days with a better quality of life. Sending you out some positive energy. 🙂

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Hello @lavivi, Welcome to Mayo Clinic Connect! It’s nice to see that you commented on not feeling alone after reading others experiences. It’s the beauty of Mayo Clinic Connect.
I’m sorry to hear you have been struggling with constant dizziness. I wanted to offer up contact information to Mayo Clinics Vestibular and Balance Testing Laboratory. You will find the link attached helpful http://mayocl.in/2eqfcUX along with contact numbers to the appointment desk found under the “overview” tab. The Ear Nose and Throat appointment line answers calls from many patients, like yourself looking for guidance on where to start for entry into the Vestibular program. It’s a program like no other with extensive testing.

There’s also helpful information in the posts above on VEDA- https://vestibular.ong/# ((Vestibular Disorders Association) that you may find helpful.

Have you consulted with your Doctor to see if there is any type of therapy offered that may help you with your floating and spinning sensations?

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I found some posts about Chronic Subjective Dizziness on this discussion board (there may be some on the Brain and Nerve Disease, and Ear Nose and Throat Conditions boards too) and want to learn more about this diagnosis. I received the diagnosis from a specialist at Duke Hospital in last December 2014 after experiencing this strange set of symptoms since April, 2014. Call me Roman. It’s a pseudonym, but if you like I’ll explain why I chose it.

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@irishlace38

Chronic dizziness is a terrible & sometimes disabling way to live. Have enduring this for 7 mos. some days are better than others. I have a arthritic neck & wonder if that could be a cause. Doc doesn’t think so. To have mri & cat scan wed & not looking forward to it – will need to medicate. I hope I get through it.!!

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Cervicogenic dizziness is another diagnosis you may want to look into.

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@krissmith12

Cervicogenic dizziness is another diagnosis you may want to look into.

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Welcome to Connect, @krissmith12. May I ask if you could share more about yourself? Have you been diagnosed with cervicogenic or chronic subjective dizziness? Insights about managing this condition?

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