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John L (@johnl1)

Chronic subjective dizziness

Ear, Nose & Throat (ENT) | Last Active: Nov 19, 2018 | Replies (37)

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Hi @trishanna,
I’m tagging @johnl1 who wrote a while back about Meniere’s disease. I hope he’ll rejoin the conversation.
Trish, how frustrating it must be to deal with Meniere’s after a 40 year absence. Do you know what caused this episode? How are you managing it?

Several members have written about dealing with tinnitus. Here are a few discussions you may wish to check out:

– Hearing repeated sounds and echo in my ear http://mayocl.in/2loSK10
– Pulsatile Tinnitus and Carotid Fibromuscular Dysplasia (FMD) http://mayocl.in/2lAEeW9
– Live Q&A: Hearing Wellness: Signs, Symptoms, and Treatment http://mayocl.in/2lACpbN

I encourage you to continue the discussion here or perhaps start a new discussion dedicated to Meniere’s and tinnitus.

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Replies to "Hi @trishanna, I'm tagging @johnl1 who wrote a while back about Meniere's disease. I hope he'll..."

Thanks for responding.  It appears that some of the linked sites are down for whatever reason, but I’ll check back.  Hope someone responds because it seems that Meniere’s affects a relatively small number of people.  It’s recommended that one join a support group – not easy to do.  My original diagnosis was that an allergy to oats, corn or wheat was causing my symptoms, and yet I can find almost nothing on the subject.  Just wondered if any progress has been made other than controlling symptoms.  While recovering from an illness, I leaned heavily on prepared foods which are extremely high in sodium content, thus causing this flair up, so I’ve tightened up on salt intake and am doing better.  I also believe there is linkage between Meniere’s and tinnitus, but can find nothing on that, either. 

@trishanna, the links are working for me. Can you please try again?
I will search for others talking about Meniere’s. No promises, but I do what we can. 🙂

In the meantime, I hope you have seen @suzanne321‘s message above. She just joined the community and would like to about tinnitus with you.

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