Chronic pancreatitis, mesenteric panniculitis... and more?
Hello! My name is Sally, I live in Boston, and I come to you for some guidance! I have been chronically ill for 20 years, but the last 18 months have been the worst.
In 2000 I had pancreatitis due to gallstones. They removed my gallbladder, and told me to be on a low fat diet and no alcohol going forward. I am very much a follower of doctor's orders, and still follow til this day! I also work out 3x a week, and have so for as long as I can remember. For the next ten years I never really felt right, and no doctor could put a finger on it. Fast forward to 2010… I was admitted to the hospital with a pancreas the size of a grapefruit. I was in a massive attack of pancreatitis. Over the years this has now become chronic. Since then, extreme pain in my upper abdomen (right where my bra hits on the bottom) is an every day occurrence.
The summer of 2019 I started to feel sick again. Constipation, diarrhea, bloody diarrhea, weeks of lost blood… and nausea and vomiting. Now it is at the point where the nausea and vomiting are daily. Usually in the morning. Sometimes I can be laying in bed and just start to vomit on myself. And the pain… I have been in the ER more times than I can count simply to get pain management and fluids from the vomiting.
Winter of 2020 I was admitted to the hospital for four nights with mesenteric panniculitis. What led me there was pain and vomiting 10x more than my usual daily routine. The MP was found by a CT Scan.
I've had everything you can think of done to me- colonoscopies, endoscopies, gastric emptying studies, pills to help with this and that before I eat, pancreatic enzymes. Nothing has helped. I have been an absolute hound dog trying to find an answer for myself.
My GI suggested I see a gastro surgeon. Last week I had an MRI and it showed that I had a redundant colon, and some feces that appeared to be impacted. My mother, and my two twin uncles have had issues with blockages as they have gotten older. Maybe it's this? I have no idea.
I am reaching out to this group to see if anyone has any ideas, or leads that I can chase! I am desperate for help. Thank you for taking the time to read my story!