← Return to Chronic pancreatitis, mesenteric panniculitis... and more?

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@kimh

Hello everyone...I'm back...actually never left the MP page! Welcome to @sallycinnamon. I was diagnosed 6 1/2 years ago with MP. After three CTs, numerous ER visits and a surgical biopsy, I received the 'official' diagnosis and was put on Prednisone (40 mg) for three months and then began a slow taper for another 2 or 3 months. I ended up in remission for two years and honestly was beginning to forget that I even had the disease. And then it reared its ugly head again by August 2017. I have heard that it is rare to fall out of remission, but I don't know that there is enough research on that. Since August 2017, I have been battling the MP symptoms with Prednisone, Tamoxifen and Azathioprine. I also have Polymyalgia Rheumatica, so my rheumatologist has also put me on Methotrexate (which may help with the MP as well). I was told that once you have one autoimmune disease, you are susceptible to getting others. Anyway, I hope my information will help you heal in your journey to remission!

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Replies to "Hello everyone...I'm back...actually never left the MP page! Welcome to @sallycinnamon. I was diagnosed 6 1/2..."

Hello @kimh! Thank you so much for writing back! I was afraid that someone was going to eventually mention Prednisone. I have been on it for various things in my life, and had some pretty bad side effects. Is that something that you have had to deal with? I am sorry that you are going through this! MP is a stinker for sure, and my heart goes out to you!

Welcome back, @kimh. Did you know there is a group for Polymyalgia Rheumatica (PMR) here on Connect? See https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/