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Chronic pancreatitis, mesenteric panniculitis... and more?
Digestive Health | Last Active: Mar 27, 2021 | Replies (16)Comment receiving replies
@sallycinnamon Hello and welcome. I had to look up mesenteric panniculitis and redundant colon. Mesenteric panniculitis sounds like my "gut" issues, although I have never been given that diagnoses. I don't know that anything in my treatment would change. I have not (thankfully) had the vomiting that you are experiencing. What is working best for me is to eat small amounts frequently, making sure to eat foods with good nutritional value, and drink lots of water. I have a minimum of 80 fluid ounces a day, including up to 8 ounces of coffee a day. I occasionally have a soda or alcoholic drink, but mostly water. I hope you find relief soon, You certainly are going through a difficult time.
Replies to "@sallycinnamon Hello and welcome. I had to look up mesenteric panniculitis and redundant colon. Mesenteric panniculitis..."
Sally, because it is so rare, doctors are reluctant to diagnosis it. It took 5 CT scans in 5 months to get my diagnosis and only after they ruled out every other possible cause. I had endoscopy and colonoscopy, every conceivable blood and stool test, etc.
My recommendation is to keep pushing for answers. I got a lot of "Let's wait and see if it goes away on it's own" during my journey to a diagnosis. I refused to take that as an answer. I was miserable.
I saw 2 primary care, 3 Gastroents, and an infectious disease doc all during the Covid outbreak and over a 5 month period of time.
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Thank you @2011panc! It helps to know that there is a community that cares. I definitely have to up my water intake. I drink A LOT of Dunkin Donuts iced coffee, and Polar Seltzer like a good New England girl! But plain old water goes by the wayside. I am really going to make an effort to do so. Thanks!