Hello Amanda! Thank you so much for replying! The power of the internet!

The original doctor who diagnosed me with the MP was the doctor on duty at the hospital that I was admitted to. My GI, and my other doctors seem to think that the MP was not such a severe case that it would keep on like this, and respond with the severe symptoms. But, they all admit that MP is so rare that they don't really know for sure. I feel like I have had to be my own advocate and detective in one. It's incredibly frustrating!

The doctors have no idea why I have the panniculitis. My father has pancreatitis, and has battled ulcers his entire life. So between that and my mother's issues (I wrote of above) there are a lot of genetics that are not on my side! I really want to know my "real" diagnosis, and what I can do to help.

Thank you in advance to everyone!

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