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What helps longhaulers dealing with Chronic Fatigue?
I have been in the NIH Long Haul research program since 2020. I have been diagnosed with all the tropical symptoms- loss of taste and smell, brain fog, dizziness etc. all have improved over time with the exception of Chronic Fatigue. I have asked, even pleaded with my doctors and researchers for a solution for this and get only blank stares. I have regularly exercised, watched my diet, lost over 30 pds, get plenty of sleep and take all sorts of vitamins and supplements- with no effect. Does anyone have any suggestions? All my blood work and multiple tests with the NIH study come back normal. Very frustrating
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Hi,
I tried low dose Naloxone and it helped some, but I was recently put on Cymbalta. It has helped a lot. It is a serotonin norepineprhine reuptake inhibitor (SNRI). It has also helped with my depression and anxiety. It is not for everyone, but I know that it is used for chronic fatigue. Hang in there.
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2 ReactionsI have used LDN for three weeks now at 1.5 mg and have seen my fatigue inch away a bit. I have more energy and have been able to double the distance of my short walk. I can still get laid low if I overdue it so am trying to moderate my activity even though I feel better. A side benefit for me is that I am losing my food noise at night...so no craving after dinner.
I am now moving to liquid LDN so we can titrate the dose up and see how I do. Will be interesting to see if I do not progress on the liquid and have to move back to the pills. The compounded pills are expensive and not covered by my insurance...the compounded liquid is covered.
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5 ReactionsNaloxone? That's interesting. Does it work like low dose naltrexone?
Learn to pace yourself and accept it....3yrs later and i am half the man i was.
I no longer can do a list of chores in one day....I break things that need to be done into doing 1 a day.
If i do too much i crash and get worn out and get so sore it's painful to just to stand up from a chair or sofa and walk.
At first i fought it, But after paying the price of doing too much i gave in and accepted it as my new normal.
Accept that you can only do what you can do.
I am hopeful as research comes along we will all be able to get back to where we were Pre Covid or at least
close to where we were.
For reference im a 55 yr old male....Who completely remodeled his basement in 2019 and i look at it now
and say ....No way could i even attempt that now.
Try to do one little chore a day and pat yourself on the back when your done.
Hang in there!!
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11 ReactionsWondering the same thing
I have been on LDN - the pills - for about 3 months. I have found it to be a miracle worker. I am now walking distances without breathlessness and most days, I have more energy. I moved from taking the LDN with dinner because of weird dreams and sleep disturbances and now take it each morning with breakfast. LDN has not taken care of all my Long Covid/CFS and fibromyalgia symptoms but I do feel so much better. I titrated up to 4.5 mg. I had balance/dizziness problems and gastro issues before LDN and continue to have those symptoms.
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3 ReactionsIs this different than naltrexone?
My apologies. I meant Naltrexone. Both are opioid antagonists and target specific opioid receptors in the brain, however, the medication, Suboxone, has buprenorphine and naloxone in it to help people coming off of opioids and is also in Narcan and used to reverse overdose.
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4 ReactionsPlease, what is LDN? Thanks.
Sorry, LDN is Low Dose Naltrexone, 4.5 mg. It's a compounded prescription.