Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

My mom found out she had cancer in november 2023 and in January t2024 they recently said it was stage 4 bile duct cancer and now they want to remove her gallbladder she has had a tube in her side to drain the bile and now they have inside of her she always sick cant hold down food and they still haven't put her on treatment or chemo nothing they just keep postponing it like they don't care she is 57 years old and is giving up because she feels like itnot gonna help to get treatment, plus she is tired she lives in Oklahoma and I'm in Texas I been trying to get her to get my sister to bring her to me and I've been trying to fight it for her everyday but I do research all the time online but dont know much about her condition to know what I should do any advice would help tremendously

Yes. They told us he has about 1 year to live. But, we are looking for something better than that. I do a lot of research and we have a great oncologist too.
To answer your question, I have read that CART-T-Cell therapy works best for blood cancers not so much solid tumors. But they are continuing to work on that for solid tumors. The most advanced treatment for bile duct cancer right now is Futibatinib. Your oncologist can help you figure out later when the chemo they are taking is no longer effective and if that treatment will work for them.

My wife was diagnosed with bile duct cancer last Oct. with 3 to 6 months life expectancy left. She is on chemotherapy and immunotherapy. The treatments stopped the growth of the cancer but far from a cure. Currently investigating Car-T cell therapy for her. Just wonder if anyone has data or information on the CAR-T Cell therapy on Cholangiocarcinoma( bile duct cancer)?

What part of your body did you have surgery on? My husband has bile duct cancer that spread throughout both sides of his liver and 2 lymph nodes. He just got diagnosed in Dec. We are looking to fight and find a cure

My husband was diagnosed with bile duct cancer Dec. 2023, so just a very short time ago. It spread throughout both sides of his liver and 2 lymph nodes. He is reacting well to his chemo so far. I am wondering if your cancer spread to another organ? And what treatments you are taking?We were told he has about 1 year to live. We want to fight this and find a cure.

Good luck with your treatment. I hope everything works out for you. I have cancer too but decided not to treat it. I keep reading about where chemo has helped, I hope you are one of the success stories. Take care.

Hello. I, too, have been diagnosed with cholangiocarcinoma, intrahepatic, stage 4. I have not received any treatment yet but since I have exhausted all efforts looking for alternative treatment other than chemo, I am now ready to start with chemo (gemcitabine/cisplatin + durvalumab (immunotherapy).
I have consulted with Huntsman Cancer Institute in Utah, Memorial Sloan Kettering in New York and Mayo Clinic in Minnesota.

Hi! I am from Europe. My mother has Cholangiocarcinoma. We were told that it is inoperable and there is no Targeted therapy. She is only 53. I still have hope and I am looking for help. How are you? Can you recommed any treatment / consultation in the USA ?

@edie78t, your oncologist will be able to tell you. It will depend on your tumor characteristics like type, stage, markers, and other factors. It's a good question to ask!

If you want to ask about possible clinical trials available at Mayo Clinic you can search here https://www.mayo.edu/research/clinical-trials or call 855-776-0015.

@jalewallen74 @billdemarco @lovingwifeterry @timdale @tball3748 may have more to add.

Keep asking questions, Edie. You're asking good ones.

Thank you Colleen. I appreciate the information. How do I know if I could be a candidate for
1. Targeted drug therapy
2. Heating cancer cells
3. Photodynamic therapy

I would like to try one of those. I am open to participate in a clinical trial if there is one. Thank you.