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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~
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I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~
Interested in more discussions like this? Go to the Liver Cancer Support Group.
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We went to a “teaching class on chemotherapy “ today. My husband starts his first round of chemo tomorrow. The three drugs he will be receiving during his series of treatments are IMFINZI, PLATINO, and GEMZAR. Any info or experiences with these drugs is very much appreciated. I am still waiting to hear from MD Anderson in Houston.
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1 ReactionThanks so much for sharing 🙏💕
Hi, i have been to MD Anderson Cancer Center in Houston in 2006 but it was for Uterine Sarcoma Cancer. The doctors I had were wonderful. My cancer was stage IV. Ive been doing well since 2006. Today I have other health problems not related to that cancer. I met many people undergoing different treatments (at MD Anderson )for all kinds of cancer. I met a husband and wife who’s husband had been transported on a gurney from CA because he couldn’t walk and had been given less than 6 months to live. He was happy, walking, on his way home after successful stem cell therapy. I also met someone who came from a small town where the local hospital had removed prostrate and botched the surgery but MD Anderson could not repair the damage that had been done. I have nothing but good things to say about MD Anderson Cancer Center and the doctors/surgeons that i had.
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2 ReactionsMy name is John. My research showed that Mayo-Rochester is one of the top research facilities in the world for Cholangiocarcinoma Treatment. I live in Houston and am being treated here currently with Imfinzi immunotherapy. My cancer did not spread and my PET Scans show it is shrinking. I tolerate the side effects well. Feel free to share with me on this forum.
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1 ReactionI am John, living in Houston. I was diagnosed with Cholangiocarcinoma a year ago. My first indication of a problem was, "I've fallen and I can't get up" lol, just like the TV add. I went to my primary doctor, had a blood test which came back with a biomarker showing too much Calcium. A biopsy and then a PET Scan showed 3 Bile Duct Lesions. Fortunately the cancer had not spread. My Oncologist started me on Chemotherapy Infusions of Gemcitabine and Cisplatin which proved to be hard on my kidneys. I had a port implanted for the infusions. I am now on the Immunotherapy drug Imfinzi which is less toxic than chemo. These treatments have kept the cancer from spreading and the 3 lesions are shrinking. My side effects are the same for both types of treatment. For 3 days I don't want to eat or drink plain water. I'm tired, sleepy, have brain "fog", confusion, forgetfulness and muscular weakness, restless sleep and rest when needed. Lights and sounds are bothersome. I hope this helps and feel free to contact me on this forum.
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2 ReactionsThank you Colleen. It helps to hear from others sharing their experiences. Thanks to all 🙏💕
I also have Cholangiocarcinoma and having good results with Chemotherapy and Immunotherapy. I also will be glad to correspond with anyone on this forum. John
Thanks for your post. I had good results with Gemcitabine. I was taken off of Cisplatin because it was too hard on my body. My Cholangiocarcinoma did not spread and the 3 lesions are reduced in size as confirmed by PET Scans. My Oncologist has stopped the chemo and switched me to Imfinzi. Stay in touch. John
To be honest, I love the change to Imfinzi infusion once a month with nothing else but a small bag of Imfinzi taking 1 hour. With chemo it was 2 bags of chemo drugs, 2 bags of saline and 3 hours 3 times a month. I have a port which makes the infusion less painful than getting a pic needle infusion. My side effects of Imfinzi are similar to the chemo but only once a month and I am use to them. Food aversion, fatigue, brain fog, confusion, forgetfulness, trouble finding the correct spelling of words and finishing sentences. I take rest as needed. My side effects last 2 or 3 days. Stay in touch.
Hello, so happy to
hear that you have done well on the chemo for a whole year! My husband was on other chemo as they first though he had pantritic cancer. Now that it is bile duct he is scheduled to start with the same chemo and Imfinzi as you. He has been through a lot with chemo being very hard on him and then the whipple which they couldn't complete because of spreading of the cancer. Please let me know how you are doing on the new drug and are you just on the Imfinzi? With all of his side effects I think he may be only on the Imfinzi also.