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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Liver Cancer | Last Active: Jun 18 5:20pm | Replies (204)
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@lilbit78

After many call we have found that it is non small cell carcinoma on the liver duct (cholangiocarcinoma). Very fatal and rare. He doesn’t see the Oncologist for 2 more weeks so no plan of care yet. My FIL doesn’t want to tell the family yet esp my MIL as she has health issues of her own. So we’re just waiting and praying. It’s hard, but we have to respect his wishes.

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Replies to "After many call we have found that it is non small cell carcinoma on the liver..."
Lisa, Volunteer Mentor | @lls8000 | Apr 12 1:37pm

@lilbit78, Try to keep in mind that every person that is diagnosed with cancer will process treatments differently. Advancements are happening fast in some areas of cancer research, and statistics that you see today are generally lagging behind. I have stage IV lung cancer, and the statistics for survival are based on people that did not have access to the treatment that I'm on today. At 4 years post-diagnosis, I've already surpassed my initial prognosis. There is real hope in today's targeted cancer care.
"In the last several years there have been significant new insights into the molecular pathogenesis of CCA. New diagnostic and therapeutic modalities have also been developed, resulting in improved detection rates and outcomes. In addition, we have now entered the era of targeted therapies for human cancers." (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2547491)

There are others on Connect facing a similar diagnosis. Here's a link to a related post: https://connect.mayoclinic.org/comment/652854/

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Colleen Young, Connect Director | @colleenyoung | Apr 12 3:22pm

Hi @lilbit78, I'm glad that you were able to get clarification on your father-in-law's diagnosis of non small cell cholangiocarcinoma. I moved you posts to this existing discussion:
- Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/

I did this so you can connect with other members with a similar diagnosis more easily. I can imagine that this is very hard on everyone, especially the waiting. Is he being seen at a cancer center? Is it close to home?

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